Thank you both Beth and Graig for your messages, your comments mean a lot and are appreciated. I’m sorry for the delay in my reply but I’m still waiting for my broadband box to arrive, but I have now learnt how to sync my phone to my iPad ha ha!
Also, thank you for your message Madeline, I’m so pleased that youbfound my story helpful although I’m sorry to hear that you yourself are having to look into the MVD route. However, if, like myself you are unable to tolerate the meds then I would say have a serious think about it - if this relieves you of the pain and no more meds and you get your life back then it’s defiantly worth thinking about it! It’s still very early days for me to say if the MVD has been successful, as I’m still taking a high level of pain medication but I am hopeful that it will have been successful. If I continue to get pain I feel that this will probably be more to do with the indentations to my nerve rather than a failed procedure but as I said I am trying to be positive!
Anne, I suppose I was lucky as my MRI and MRA did show arteries pressing on the TN, on the right side it apparently showed a loop going around it and on the left it showed something resting on it. I have read posts before where peopls MRI’s haven’t showed up anything but following their MVD’s they have been told what has been causing the problem and as a consequent they have then been pain free. I am sorry that I am unable to give either yourself or Madeline any first class advice upon this as I know it is a very big decision for you both to make! I do hope that someone else reading this will be able to give you first hand advice upon this. I also would like you wish you both the very best of luck with your procedures and please let me know when they are and how you get on.
Again, all the very best to you both…and hopefully you will both soon be on the road to recovery!
Mandy : )
Thank you both Beth and Graig for your messages, your comments mean a lot and are appreciated. I'm sorry for the delay in my reply but I'm still waiting for my broadband box to arrive, but I have now learnt how to sync my phone to my iPad ha ha! Also, thank you for your message Madeline, I'm so pleased that youbfound my story helpful although I'm sorry to hear that you yourself are having to look into the MVD route. However, if, like myself you are unable to tolerate the meds then I would say have a serious think about it - if this relieves you of the pain and no more meds and you get your life back then it's defiantly worth thinking about it! It's still very early days for me to say if the MVD has been successful, as I'm still taking a high level of pain medication but I am hopeful that it will have been successful. If I continue to get pain I feel that this will probably be more to do with the indentations to my nerve rather than a failed procedure but as I said I am trying to be positive!
Anne, I suppose I was lucky as my MRI and MRA did show arteries pressing on the TN, on the right side it apparently showed a loop going around it and on the left it showed something resting on it. I have read posts before where peopls MRI's haven't showed up anything but following their MVD's they have been told what has been causing the problem and as a consequent they have then been pain free. I am sorry that I am unable to give either yourself or Madeline any first class advice upon this as I know it is a very big decision for you both to make! I do hope that someone else reading this will be able to give you first hand advice upon this. I also would like you wish you both the very best of luck with your procedures and please let me know when they are and how you get on. Again, all the very best to you both......and hopefully you will both soon be on the road to recovery! Mandy : )
wow, just got "the call" going on thursday this week to see the anesthetist, and booked in for op on 28th. its very exciting if not a bit scarey....... i am so looking forward to being pain free. to wash my face, to wash my hair without getting myself into all sorts of weird positions to stop water getting on my face.....
i have lived like this for years, anything is going to be better than life now??
Mandy, well done for getting through it all, I have been thinking of you during all this time and hadnt realised that you had posted and came across this thread tonight and realised it had been started by you! I was so happy to hear from you. On the down side is the horrible realisation that your ex may be responsible for all that you have been through, please dont let that eat you up, hopefully the MVD has taken the last traces of him from your life. Continue to rest and get well, you have so much to look forward too, your lovely family and grandsons, all for you to enjoy xxxxxxx
My ex was abusive as well....Don't think to the extent you went through, but it was very hard at times.....My Sunday School teacher was Beth Moore....She used to say, "STOP rewinding "old tapes" in your mind...Erase them, and by GOD'S GRACE go on......I can say I have forgiven him and life goes on....Praying for your peace and healing...
Hi Anne, And wow, your call was very quick! I wish you all the luck in the world for your procedure and for an excellent outcome. As everyone said and keeps saying to me, this is going to be a big turning point in your life, one where afterewards, you will pain free and have your old life back again to do all of the things that the want to do!
Good luck for the 28th and please keep us posted following your procedure on how you are doing!
Love and (((hugs)))
Mandy
anne morris said:
hello mandy and all,
wow, just got "the call" going on thursday this week to see the anesthetist, and booked in for op on 28th. its very exciting if not a bit scarey....... i am so looking forward to being pain free. to wash my face, to wash my hair without getting myself into all sorts of weird positions to stop water getting on my face.....
i have lived like this for years, anything is going to be better than life now??
Thank you for your message and sorry to hear about your past too. I think any DV is as bad as anyones as it shouldn't happen to any of us, no matter to what extent, if you know what i mean! Your sunday school teachers words were very wise, however, I thought I had moved away from that a long, long time ago as I left my ex-husband in 1989. This has just knocked me a little and has brough back past memories to the surface again. I know I am strong enough to move forward from this but it does sadden me to see my 3 children being affected by this and being so worried about their Mum, but as I have said to them, that it is what it is and we'll all get through it together!
You also asked if my pain was TN pain or pain from the op, at this moment in time, I'm really not sure due to the amount of pain meds that I am currently taking but I am hoping that it is only pain from the op and that things are still just settling down however, on Saturday evening I did have a bad TN attack on my left side but again i am trying to remain positive and am hoping that this was just a one off.....fingers crossed ha ha!
I'm sure that those tapes will soon stop re-winding and I will now also remember your Sunday school teachers words too!
Hope you are keeping as well as can be expected and not in too much pain.
Cheryl said:
Dear Mandy,
My ex was abusive as well....Don't think to the extent you went through, but it was very hard at times.....My Sunday School teacher was Beth Moore....She used to say, "STOP rewinding "old tapes" in your mind...Erase them, and by GOD'S GRACE go on......I can say I have forgiven him and life goes on....Praying for your peace and healing...
How funny,I was thinking about you last night and was going to message you today anyway.....as the old saying goes, great minds think alike ha ha!
Anyway, thank you for your message and you are right, I do have so much to look forward to....I am waiting on bated breath at the moment as my sons partners due date is Thursday, so my second grandson could arrive at any time.....soooo excited,even if at the moment I am not allowed to pick him up (once he is here that is!).
I saw my own GP last Thursday and spoke to himabout what the NS had said to me and he explained that if you are knocked unconcious that that is a sign that the brain has suffered a trauma from being bashed against the skull, from this causes bruising and thus scarring and in some cases follows adhesions, as in my case therfore, he said that that is the most likely cause from my TN. However,as I keep saying, it is what it is, although I think I would have rather it had been caused from something else than knowing that HE had caused me more sufferring but hey ho....life goes on and as you said I've got a lot to look forward to and there is no room in it for him!
Simon went back to work on Monday but my middle daughter Tania has taken this week off to 'look after me'....Ohhh, how the tables have turned ha ha! between them, they won't let me do much and as Simon says his biggest job is trying to stop me doing things, but it is hard to sit back and let the others take over as most of the time now I feel well enough to do things and am eager to get on and do them myself ha ha!
Take care and keep in touch
(((Hugs)))
Mandy xxx elstep said:
Mandy, well done for getting through it all, I have been thinking of you during all this time and hadnt realised that you had posted and came across this thread tonight and realised it had been started by you! I was so happy to hear from you. On the down side is the horrible realisation that your ex may be responsible for all that you have been through, please dont let that eat you up, hopefully the MVD has taken the last traces of him from your life. Continue to rest and get well, you have so much to look forward too, your lovely family and grandsons, all for you to enjoy xxxxxxx
Just so glad you got through the op ok, I was getting concerned as I thought we had not heard from you ( we heard from Jac that is went well) and then I was waiting for you to come on and tell us how it went. I knew you dont always have access to a PC so I tried not to worry and didnt want to bug you with a personnel message if you weren't feeling well, then low and behold, it had been there all the time and I missed it! So glad your lovely family are around taking care of you. From what I have read it does take a long time for the nerves to settle after an MVD so take it easy,dont rush into anything, be kind to yourself, wish i lived nearer I would be around to make you a cup of coffee! xxxxxx
Thank you for youe message Seow, each day seems to be better than the day before, so hopefuuly it won't be toolong before I am totally back on my feet again!
Also, thanks again Elaine, I soo wish that you lived nearer too, it's such a shame that we all live so far away from each other! You never know,one day you may decide to holiday in N, Yorks and then I can make you a coffee ha ha! I'd even supply cream cakes, well the local bakery would anyway ha ha!
I don't know about other people, but I've had to surrender my driving licence, the DVLA say that after an MVD you shouldn't drive for upto 6 months and going by what the Drs at the hospital were saying that they follow this up themselves with the DVLA so I didn't really have any other option other than to contact them! However, if I'm doing okay prior to 6 months and with a Dr's note I may be able to get it back before, so I guess I'll just have to wait and see how I do! I haven't really done any driving over the past year so I guess a few more months won't make any difference!!!
Hope you are keeping well and that this cold weather hasn't set you off again! xxxxxx
You are so right....The hurt doesn't ever totally go away, but I refuse to let him ruin my life...The thing I hate the most is that it still hurts my son....He is 30 yrs old now, but it is very sad for me to see that he has no Dad....He is a strong kid and will survive....Praying for you....
Mandy said:
Hi Cheryl,
Thank you for your message and sorry to hear about your past too. I think any DV is as bad as anyones as it shouldn't happen to any of us, no matter to what extent, if you know what i mean! Your sunday school teachers words were very wise, however, I thought I had moved away from that a long, long time ago as I left my ex-husband in 1989. This has just knocked me a little and has brough back past memories to the surface again. I know I am strong enough to move forward from this but it does sadden me to see my 3 children being affected by this and being so worried about their Mum, but as I have said to them, that it is what it is and we'll all get through it together!
You also asked if my pain was TN pain or pain from the op, at this moment in time, I'm really not sure due to the amount of pain meds that I am currently taking but I am hoping that it is only pain from the op and that things are still just settling down however, on Saturday evening I did have a bad TN attack on my left side but again i am trying to remain positive and am hoping that this was just a one off.....fingers crossed ha ha!
I'm sure that those tapes will soon stop re-winding and I will now also remember your Sunday school teachers words too!
Hope you are keeping as well as can be expected and not in too much pain.
Cheryl said:
Dear Mandy,
My ex was abusive as well....Don't think to the extent you went through, but it was very hard at times.....My Sunday School teacher was Beth Moore....She used to say, "STOP rewinding "old tapes" in your mind...Erase them, and by GOD'S GRACE go on......I can say I have forgiven him and life goes on....Praying for your peace and healing...
Wow they take your drivers license for a long time!! I am almost 6 weeks out of my MVD and driving with no issues at all. My pain is finally gone, it did take a few weeks for the nerves to settle down, so bear with it if you are still having some pain. I get a twinge now and again, but I wouldnt even call it pain, and its gone so quick. You will be feeling great before you know it
Hi Wendy, it was good to read your message, having my MVD done on 28th, talk about scared, not of the op, but afterwards, headaches, balance issues are my greatest fears, so you put my mind at rest , you hear some horror stories? This disease we all share is horrendous… no one should go through it… today I go to hospital for pre op stuff with anesthetist, so now it feels like it’s really happening. I hope to get back to you all afterwards ( after 28th) with good news on how the op went. Wishing everyone a great pain free day. Anne
Wendy so glad you are feeling better......I am a little nervous, but I am ready to get it done.....I have had very little pain the last few weeks, but I know I need to do it before it gets bad again....Have a Happy Thanksgiving...
Me too Cheryl, it’s been a good week pain wise, but I know it will come back, I am waiting??? I am at pre op in the hospital at the moment, getting all the tests out of the way, op next wed 28th… scared to death, but the alternative is worse… thinking of you, hoping for great things ? Anne
I can reallly appreciate howyou both must be feeling at the moment,I felt the same way prior to my op! I'll be perfectly honest with you both, the pain/headaches following the op really aren't very nice but the nurses make sure that you get your pain meds on time, as you will be on a drip initially the drugs are fed intraveniously so they get to work straight away, if you get any pain inbetween times then they are able to give other pain killers to get you through to your next 4 hourly meds; so please don't be too worried about that. The worst pains only lasts for a few days but honestly the nurses will look after you really well. The hospital where I had my op they were really short staffed and they were chasing their tails but they still looked after me really well.......I hope this has put your minds at reat a little, although I know the nerves will still be there,If the pain remains in my left side also,I will have no hesitation in having the op on that side also but I hope that this won't be the case!
As I've said before, good luck with your ops and please keepus all posted on your progress, I have found it very comforting talking to all you guys following my op and I hope you find it the same following yours.
Happy Thanksgiving from the UK xxx
Hi Wendy, It's good to hear that your progress continues to be going well, you sound as though you have recovered extremely well! I amgetting stronger day by day but am still getting pain in my head (controlled by the pain meds though) but I'm also still getting pain in my face and right where my jaw meets by my ear which I never really suffered with prior to the op. I am hoping that this is still the nerve settling down but am keeping an eye on this. If he pain doesn't disappear I think as, I think Ive probably said before, that this is probably more to do with my TN being so damaged rather than a failed procedure but hopefully as you've said that this will settle given time!
Good luck with your pre-op assessment today Anne xxx
As for my driving licence, I think I may put up a seperate discussion for the UK members to see if anyone else has had to surrender their licence or whether this is just an issue that is a big issue at the hospital where I had my procedure, I really hated having to surrender my licence, I know when I can and can't drive and would never anticipate driving if i ever felt wobbly etc.....so watch this space as they say ha ha!