I had thought that I had my first true attack a few months ago when my husband reminded me of an incident 3 years ago. I suddenly stopped, the pain was so intense. It was one of my teeth. The tears started streaming down my face. I got on the phone and called my dentist and remember telling him that this was the "worst pain that I have ever had." I was crying, trying to think of anything that would stop it. He called in a pain killer to my pharmacy. I made it to the pharmacy and had to wait. My hand was at my mouth, protecting it and tears were streaming down my face. I couldn't stop crying even if I wanted to. I got the pills took three and drove home before they took effect. They worked and I fell asleep only to have my eyes pop open 4 hours later when they wore off.
Shortly after that I started lamictal for depression, was on klonopin for pelvic pain and had to have B12 shots because I could no longer absorb it through the intestines. I think this "treated" it without it ever being diagnosed. I had a root canal then surgery on another tooth. That hellish pain never returned but all my upper teeth on the left side of my mouth have one or even two root canals and two apiectomies, because of pain. Finally when the pain broke through and could not be controlled by percocet I went back only to be told that they couldn't find anything wrong. No sign of infection. I searched the web and came up with TN. I asked my dentist if the next step was to see a neurologist but he was first to mention tic douloureux and myofacial pain.
All this time I thought that it was my teeth and put that "worst pain in my life" in the back of my mind, thinking it was taken care of. I'm going to say a few f-bombs here because I DID have my first attack years ago and all that work and money on my teeth. But what's worse is knowing that I might have to face that pain again. It was horrible.
I too thought it was my teeth, I went to a dentist because I thought I needed root canal, thankfully the dentist said she thought it was neurological. After two weeks of hospital visits etc. i finally had a doctor diagnose me with TN. The doctor told me this would last about another week then go into remission for years (that can happen). I was elated, the pain was so bad I screamed into a pillow for 2 days. Long story short, there has been no remission, I have had steady pain since March, the meds help, but now are not and I am running out of options...I so understand your statement about knowing this may last, this had been the hardest thing that I have to face, I refuse to believe that I will be fighting this the rest of my life. I hope you are feeling well and having a good day
This is such a strange condition. I too have been to the dentist in the past hinking I needed root canal. After my most recent attack I have been comfortable for almost a week, but in the last two days the tooth pain is beginning again. I’m still on neurontin. I hope it doesn’t become full blown again. It’s so soon from the last flare up.
I too thought it was my teeth, I went to a dentist because I thought I needed root canal, thankfully the dentist said she thought it was neurological. After two weeks of hospital visits etc. i finally had a doctor diagnose me with TN. The doctor told me this would last about another week then go into remission for years (that can happen). I was elated, the pain was so bad I screamed into a pillow for 2 days. Long story short, there has been no remission, I have had steady pain since March, the meds help, but now are not and I am running out of options...I so understand your statement about knowing this may last, this had been the hardest thing that I have to face, I refuse to believe that I will be fighting this the rest of my life. I hope you are feeling well and having a good day
This is such a strange condition. I too have been to the dentist in the past hinking I needed root canal. After my most recent attack I have been comfortable for almost a week, but in the last two days the tooth pain is beginning again. I'm still on neurontin. I hope it doesn't become full blown again. It's so soon from the last flare up.
Good! Thank goodness the discomfort seems to have calmed down. I’ve been diligent with eating soft,non inflammatory foods and wearing my mouth guard when I sleep so I don’t clench my teeth at night. I’m already on 1300 mg of neurontin plus MS meds so I really didn’t want to add more milligrams or additional meds. Thank you for checking in with me! :). How are you feeling?
Increased my meds, triletptal, experiencing the side effects but it keeps wearing off in a few days and I'm back to break through pain. Not bad. I guess it's what I can live with. Had work on my tooth today. Just a new crown but no pain from it. It's definitely not the tooth. My dentist has two other patients with TN so I don't have to teach him all about it. I'm glad you're doing better.
I have actually cut back my meds this week to once a day of lyrica, I am now having a weird quiverring on my left side, the major pain is on the left. I think I now have this bilatterally. I can deal with what is going on on the left side, the right is calming down a little. I cut the meds back because I am sick of laying around all day. Hope you guys are well today