Hi guys, I am new here and was hoping for some feedback.I had my first bout of TN at 23.Then on average I have had one every 4 years or so.During this time. ( I am now 46). I have had periods of muscle tightness to the point I can’t walk.numbness . Jerky ,twitchy legs, feeling like ants are crawling on my skin.bladder,bowel issues.a lot of eye problems.I have been waiting for something to really hit me hard ,but it hasn’t . I am going for an MRI soon. What are your thoughts on possible ms. My doctor said I was very young to have TN and that younger people with are more likely to have ms.i have lived withll m
Hi welcome hope you are feeling better, sorry to hear you are going through so much, sorry I can’t be much help as far as your other symptoms I can rate to the bowel as I’m having so much stomach pain I was in hospital a few weeks ago with TN and intense stomach pain, it was explained to me that TN is all nerve and we have nerves in our stomach so when the TN acts up it effects the stomach. You will find this site is very helpful. Sunshine
Hi Michelle,
I was diagnosed with bilateral TN at age 29, I was being investigated for MS prior to my TN diagnosis as I was having many odd neurological symptoms at the time… I too was told to young for TN .
I’m now 42 and NO MS. Just bilateral TN.
The field of neurology is so vast, and many symptoms overlap and in my case despite hand tremors, foot drop, muscle tightness, bladder issues,sensory symptoms like the ants etc etc I do not have MS, and no real explanation as to why I experienced any of those symptoms all those years ago.
I still have hand tremors and barely notice it.
Try not to worry, I know easier said than done…just ensure you’ve had every test possible ( mris, spinal tap etc) and keep track of your symptoms to share with your neurologist.
Positive thoughts, (( hugs )) Mimi
I first had ATN at 29. I had a seven year remission and it came back two years ago. I am bilateral now. Doctors have frightened me about MS too. Both younger onset and bilateral symptoms are more common with TN then most DRs realize. I read a statistic that only 5% of TNers have MS. Have the necessary testing but don't jump to conclusions. For many of us nothing shows on the MRI, which is positive and negative in a way because diagnosis and treatment become more difficult.