Thought I would update you on progress. Saw Neuro on Tuesday and was told that although nothing could be seen on left side where I experience most pain there was definite compression on right side where I feel mostly numbness. He also order MRI of spine, tegretol now at 1000mg in three divided doses and Cymbalta 60mg morning and night.
Hi, this is interesting to me, I had a finding on MRI with a blood vessel on the left, but my worst pain is on the right, no finding. I got the ear loss nerve VIII ruled out as being compressed but nothing else came of it. But this neurotologist I saw told me a negative MRI does not mean you do not have TN, ATN and for me I think I have atypical GN. Can't get to a therapeutic dose of the meds because of side effects, but still taking them, low doses of 4, gabapentin, baclofen, percocet and time-released morphine added instead of increasing the percocet...that tolerance thing. Sharon