I dont know why i do this to myself or put my faith in my doctors cuz i dont even recall how many nerve blocks i have had now..ANother one done and still feel like shit.Im sorry im just fusrated and losted here.My life right now is controled by TN and i hate it.I hate myself for letting this get the best of me...Doctor told me this one for sure well take the pain away.Ya sure it did.IM still in pain feel crappy and running a fever.
Dont know what or who to turn to any more.Im trying to stay postive but its hard.One doc tells me to do this another tells me not to do that.Who are u suppose to listen to...
Hi Marina,
I’m sorry the nerve block didn’t work. TN is really bad. We have all been there. And some get more relief than others. The nerve block helped me very little and one didn’t work at all. What other treatments are you considering? Don’t give up. Keep asking for different meds or increases.
Liz
Marina,
I am sorry you are having so much pain. I know that it is extremely frustrating when we keep trying to get rid of the pain and nothing works. Know that you are not alone and that one day you will be relieved of the pain. Would you consider going to a different doc? it would be a fresh mind! I wish I had something to magically help you stay positive, but I havent found that yet! good luck!
Marina, I’m so sorry. It is also hard when you don’t or can’t trust what your doctors are telling you. Severe pain is, I found, the most difficult situation I ever dealt with. All I can do is lift you up in my prayers and tell you to keep looking until you find the answers you need. I understand…
Blessings,
Melodye
a simple nerve block injured my trigeminal nerve. it was supposed to be a routine procedure at the pain clinic. i have more pain now than i did when my pain (which may or may not have been neuropathic in the first place) began.
this condition is very poorly understood. practitioners can’t even agree why MVD works; some argue the removal of the blood vessel stops the pain; others say the disruption to the nerve during the surgery changes the nerve’s signals. nobody has the real answer. most treatments are an educated guess and a lot of hoping for the best.
stay with a doctor who has experience with facial pain; one who stays current with research and who is conservative in nature. red flags are: doctors who can not speak in the language of the disorder, doctors who offers procedures as frequent as a roulette wheel, and doctors who dismiss your pain as psychogenic.
good luck,
the researcher
I agree completely with this statement from The Researcher here: “stay with a doctor who has experience with facial pain; one who stays current with research and who is conservative in nature”. I see a doctor who is part of an Oral and Maxillofacial Surgery practice who specializes in facial pain. He uses his experience as well as strong listening skills to make recommendations for my treatments. He put me on a path of medical treatment for about four years, and during that time, as the pain increased he increased the meds and eventually tried combination meds. At that point, he recommended surgery. The surgery was successful but 2 years and 8 months later, the pain has returned. I just had an MRI last week and tomorrow I go back to the neurosurgeon to review the results. I’m very comfortable with the path I took for the first time through this, and I hope we have the same success this time around.
Do you have a doctor who can be the center of your treatment? In the sense that each specialist can report their recommendations back to him? I think that might help! Also, I don’t think you should be in pain!! They need to do more to help you if you are still having pain. I also brought a pain specialist doctor into my team of docs, and he was pretty good, too! I hope you feel better very soon!