I was looking for support with ON, but I seem to be on a TN site. Which is ok with me. I have head pain instead of face pain. Just wonder if I can’t follow directions right. Got nerve blocks today. Had them 2x before and they worked real well. But had to be realistic and cancel a beach get away with my daughter. Been asking her to go away with me for 15 yrs and this is the first time she has said yes. We already talked about another time. This is the 2nd vacation I have cancelled this month. Hope I can make it to Lake Michigan, 6days away. One day at a time
Greetings Yoga..Confusion right?..wow, our community has so many stories about confusion. Some are humorous (sort of). For example, i have put dirty dishes in the Fridge and Frozen food in the cupboard. The other day, while preparing to make a phone call I put the little notebook to my ear instead of the phone.. Every now and then Jackie the Brit puts out a list of crazy things we've done and said. Perhaps she can dig it up. But some are heart breakers, like your postponed vacation, Inabilities to act towards children and loved ones as we routinely did before this evil disorder altered our lives. I attended a TN lecture last week, and the surgeon told us the story of a successful MVD procedure. The patient told him that the happiest moment he had had since surgery was to be able to pick up and hug his kid without pain. Perhaps you and your daughter can just sit together and keep each other company. One of the most difficult aspects of all this misery is to reach some sort of acceptance and make the best substitutions for some of the things we can't do. We will be rooting for you. And when it is tough to smile, know that we are smiling for you. Any left over Birthday cake?
No leftover cake. I got pumped full of steroids today and the sheet I came home with said I would be irritable and would want to eat a lot. So I polished off the remaining piece, ice cream on the side. Yum! I know acceptance is so important…I’ve worked on it with FM, RA, OA. But I’m rather stuck here. It’ll take a while, I guess. At least I am getting more honest with my family about what I can and cannot do. Until hit with the ON and ever creeping OA, I pushed myself unmercifully. I feel little pain right now;my head is numb. And that works for tonight