My pain is so terrifying, I look up crying.
Lord I’m down on my knees, please have mercy on me.
Every time I try to stand, I look up reaching for your hand.
I can’t take the pain anymore, please send angels at my door.
No longer can I eat, drink or smile, life hasn’t lived in a while.
Lord I’m down on my knees, please have mercy on me.
God I beg - make this pain go away, the warm wind on my face on a sunny day.
Life was once so sweet, I’m sorry I couldn’t see.
Want to see all the beauty you made, want to feel the warm breeze and not be afraid.
Lord I’m down on my knees, please have mercy on me.
((( Crissy ))), wow! Thanks for sharing…
I’ve spoken a variation of these words many a time…
Huge ((( hugs ))) Mimi xx
Chrissy, I wish I had the perfect words of comfort. I just want you to know that you have so many people that understand what you go through and care about you. Be strong…May tomorrow be a better day
As Mimi said we have all experienced varying degrees of the pain you echo in your words. You've expressed so well what all of us wish the outside world could understand. Know that we all care. Your words are not left on deaf ears. Keep strong and brave, your remissions will come and it is thru these times that we appreciate so much more the little things that so many take for granted. A big warm hug coming your way from very chilly North Idaho!!!
It’s extremely hard to deal with. I feel like I have no support from my fiance. He’s never home anymore and when he talks to me he always seems annoyed. I’m new to this whole thing and am scared. I feel like the boy in the bubble, afraid to leave my house. Starting to get depressed. Is this going to be my life forever? What about summer? Can I drive with the window down? Garden? Swim? Go to backyard barbecues anymore? Somebody tell me please!
Beautiful words. May you feel your comforting angel beside you.
I see you are from Chicago... that is great! I was born and raised in Chicago and all my doctors are there. I tried meds and even had a surgery and it didn't help. I went to Cyberknife Chicago. My Doctor, Adam Dickler, has given me two radiation treatments and it has worked wonders! I feel like my life is back, I've been pain free and medication free for about 4 months now, in fact... my face is numb. To most people that doesn't sound great, but to TN sufferers, nothing is better then NOT feeling your face :). Here is a link to their website:
I strongly strongly recommend going there, it truly has changed my life! No one deserves to go through this pain, and I know it's cliche, but I wouldn't wish it to my worst enemy. I finally feel like I'm living again and I pray that one day you can feel the same relief I do right now.
Best of luck and I hope it works!
Thank you. I’ll look into it. So happy that your pain free. I love hearing those stories, it gives me hope. Thank you again @brig87cc