Just found my childhood's friends tablet and started looking for you all. Found her grandson's page, so I have been friends with her 40 so yrs. This is Horrible what ya all go through and I didn't realize how constant for her untill I moved in the middle of may. It can be she's dealing one second and a few later ready to jump out the car. I feel helpless I don't know what to do so I am scared! Then I found you all snooping, she is scaring me.Especially when her pain meds aren't enough and the pain is out of control.She is already 2 or 3 days short on her pain pills.I have made her an emergency app. for 9:00 this mourning we have been up all night she is cleaning and had a good to fair night as far as pain,no sleep is not good either. I know I will need to speak for her because even if her pain allows it, she will probabaly fall apart as soon as she opens her mouth.(not being rude) Her anxiety is just TERRIBLE! IT'S BAD! She said (not being rude again) Betsy didn't do it right. I know her and this is not her, the medical profession is acting she has a little owie. I would go to the news after her Dr. app. heck, with her, if he doesn't help her that just isn't right. I don't know if that would be wrong and I wouldn't know what to say. Any thoughts? She is scaring me BADcand a couple others but we can't get that through to those that might be able to help and it is all about pain that could be controlled much better.I am new to all of this so thanks ahead to all. My thoughts arewith you. allpunkin
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Do you know what she is on? From my experience and my knowledge of this disease just pain pills arent a long term fix. There are 2 types of this disease both are awful but is said that ppl with type 1 symptoms anti sez meds work best and for type 2 tricylic anti deppressents work best
I forgot to mention she has tn1 and tn2, going on close to 30 yrs. She has been through every combo of meds there are more then once. She has mvd gamma knife, the list is long. The problem now is helping her want to stay alive when the pain is more then she can bare like now, the weather is he..r biggest trigger. It was sunny and cold this morning now its storming and cold.Her Dr. sent his nurse out because he was so busy I don't think he had time to read notes and never answered not a one question. Now what? Thanks for any ideas.
Excuse me on not doing right? Could you explain the use of my name further....
Betsy
Anyway
See if she had tried lidocaine face patches
Or lidocaine mouthwash!
Betsy Carlson said:
Excuse me on not doing right? Could you explain the use of my name further....
Betsy
Betsy…she lives in mexico!
Get that, just believe I am the only Betsy here on the list! In post..."She said (not being rude again) Betsy didn't do it right." I had shared here about a very emotional suicide attempt that thank the Lord I didn't do right!!!! So thankful. Hope in saying this she did not mean to be rude and somehow I misunderstood the post as I like to think this is a safe place to share without something so emotional being referenced in this way! Realize she is scared for her friend and seeking help. Just wanted clarification so I know what to share in the future! Wishing us all pain free days and I am doing a whole lot better.
Betsy, I am SO SORRY! I DID NOT MEAN IT THAT WAY! I ALSO AM SO GLAD THE LORD SAVED YOUR LIFE! My fear is that the same thing will happen to her and will she be as fortunate.I don't have tn but I have been watching the last few months what she goes through, I sit through apps. and what I see the docs. just don't get it! Once again I am so sorry Betsy! This is a great site. I am so glad it's here. Any ideas would still be great. Sorry again I didn't mean to upset anyone I just want my friend to keep up the fight! Praying for everyone to keep fighting, friend