In need if some EXPERT advice please

I have applied for long term disability … Such a process! I have now been told I have to be evaluated by ‘their’ doctor and psychologist in a couple of weeks. …am going through a lawyer and was told these peeps are not usually good at giving a positive ‘diagnosis’ … Okay; I will see each person for about 30 minutes and they are supposed to KNOW me!!
I have statements from my family doc, my neurologist AND my neurosurgeon… Along with a letter stating I needed to stop working!! Ugh…

You guys that have been through this ~ any words of advice to help them ‘see’ I’m not lying or have a mental problem! …thank you for your help ~

Yes it is a long process. You will get turned down first time, and possibly 2nd time. But don't give up.

It takes most hard working people about 2 years to get approved, me, it took nearly four.

And yes, these drs they send you to, a joke, but it is part of the process.

And there are some good case workers out there who are not attorneys and charge much less.

Hang in there......

First of all, you did the correct thing by using an attorney -- trust me on that. The doctors used by SS (as many hove told me including my husband) are a joke. Just be honest with them. My husband has been on disability for chronic back pain for 11 years and it was his personal doctor's records that did the trick. In another case a dear friend of mine has fibroneurangia (sp). She tried without an attorney and was immediately turned down. She called me and I told her to get an attorney -- and within a few months she was before a judge and was granted her disability. Same thing with my brother-in-law -- no attorney the first time around and he is a double amputee. I am going to apply in June when we get back from our annual vacation because of the chronic postop headaches and pain at the mastoid bone site. I just want to make sure we are in town for whatever may pop up.

Just be honest - that is what got my husband and the others as well as having an attorney through the process. Best of luck and keep us updated.

Hi,

I am in the process of doing this as well. Mine is private disability. It is not just for trigeminal neuralgia, but also for numerous other disorders. I am almost 63 and did not expect to be turned down. I am a professor. I was initally told I did not have TN, maybe a variant of it. I was given short-term for 8 weeks when I had TN surgery by Dr. Lim at Johns Hopkins. I am still on short-term. We hired an attorney and they are reconsidering long-term. I have gotten letters from my other doctors and we will see what happens. I am not really hopeful. I do think my attorney will have to keep appealing. My MVD surgery did not take care of the problems--I wish it had. It extremely aggravated my other problems specifically the cervical radiiculopathy. I would love if I could return to work in two weeks, but there is just no way I can. My university job is an online job and there is no way I could sit at a computer for 5 to 8 hours per day 5 days per week. My neurologist and pain specialist have said this. I also have difficulty with my corneas and I see my eye doctor tomorrow. He will say the same thing. I still think they will turn me down. Now, the university wants a letter from one of these doctors saying I can return to work. I am suddenly between a rock and a hard place. No one is going to say I can return to work when they have said I can't do the job. It will take some fighting with an attorney to get it all straightened out and it is just not fair. Linda

I didn’t even use an attorney. I didn’t get turned down either. My husband wrote a letter and attached it to my application. I don’t know what he said (and I haven’t found out to this day) but I’m sure he gave his personal view of what living with me is like and how it affects our lives. I’m sure it was very descriptive. The visit to their doctor was pretty much a joke though. Just be honest. I frankly thought giving up a large chunk of my disability check to an attorney wasn’t something I didn’t want to do. Don’t know if anyone else has done this, but sometimes I think they push back harder if you have a lawyer.

No advice just ((( hugs ))) and positive thoughts Cris!
Mimi xx

I started my application in October, had two denies then got a lawyer. The doctors I seen through them knew what I had & confirmed. Was denied the first time saying I can still use my hands because I had motor skills. The second because I can still walk unassisted. My cousin has ms & got a lawyer at the start & she’s in appeals as well. Most cases get denied the first & many the second round. But do remember that TN is not recognize by disability, it’s not in their “list” of ailments. So having a lawyer may be the best option because of all the red tape. Good luck!

hello, you stated you were applying for long term disability, do you mean social security disability? If so, you will probably be turned down on your first request. The reason SS does not have enough medical records or history to make determination. IF turned down, you need to file your appeal right away, Lawyers like to drag this out as long as possible as they receive 25% of your back awards. You will need to get medical records to them, every thing you can find like drs.seen diagnosis, drugs prescribed, surgical procedures, there is also the depression that accompany this malady, and the depression issues and treatments carry a lot of weight. This second process will take six months to a year depending on your attorneys submitting records in a timely fashion. I would take a friend along when you see their drs. Just to keep them honest and insist they be with you during all aspects of you visits. Also just keep in mind these doctors represent someone's interest other than your own. There findings will not be the deciding factors in your case like anything else it can be challenged. If you are denied the second time, you can appeal and your case will be decided by an administrative law judge and in all likelyhood be awarded benefits. In the interim you can apply for short term SSI benefits, this will keep the wolves from the door while your case is decided. my best to you and hope you fare well. Joe

I don’t think I am an expert, but I will share my experience.

I recently was awarded my long term disability. I hired an attorney firm that specialized in SSI disability and they did not get any compensation unless the I was awarded disability and they could only collect on back payment and it is governed by the government. They said it would be a tough case to win.

My success was due to the fact that I had excellent records, my regular doctor wrote I letter stating my condition and what TN is and what it can do. I also had letters from family members stating what it does to me. I had the three mri’s and the evaluations from two neurologist’s which were inconclusive. The doctor at the hearing for the government was a cardiologist and an internal medicine specialist and we thought we were facing an uphill battle. When he testified he said he had done his research and he backed up what my doctor and both my family members and I had also written. The judge then spoke and said he did his research and come up with the same conclusions. He then said that neither the psychologist , my attorney, or I needed to testify. The total time of the hearing took 15 minutes and I had my positive decision then.

My advice is to have good records, letters from doctors and family members and an attorney that understands the process.

Good Luck.

Scott

Cris,

You do not need to be afraid. These doctors are not there to pest you. They are not inhuman... Do not forget that they swore to Hippocrates (!?). I went to the same ordeal to become a certain time absence from the office and was afraid every few weeks or so to get prolongation. Every time it went okay and I had nothing to worry about.

Kindest regards,

Walter

If you see on your notice of that a medical expert will be present you should get a lawyer if you don't have one. A medical expert is there for a couple of reasons. First, a medical expert will review all the medicals in the file and give his opinion if you meet or equal one of the listed impairments. The doctor may also be asked by the ALJ to give his opinion of your functional limitations. This is the equivalent of an oral RFC. A common thing ALJs do is ask the ME for his opinion of your functional limitations from all your conditions and then ask the VE a hypothetical based on the limitations expressed by the ME. ME are doctors and tend to have very strong opinions. It takes a skilled lawyer to cross examine a doctor who is used to testifying in Social Security disability hearings.

I am 47 years old. I was already out of work for a while ( i cant remember for how long) i had alot of records, about 6 years . I was turned down the 1st time and immediately got an ssi lawyer to appeal. IHe doesnt get paid unless he wins the case. lThe entire process took 9 months. I didnt have to go for any additional evaluations. I am now on disability. Ive been on it for about 2 years so now i have medicare. Now that i recall, I think i was out of work for about a year and a half. Hugs to you and good luck, just have patience.

How lucky that you can be on disability and STILL get to enjoy an annual family VACATION. WOW! I had to go on disability when I could no longer do my job, because of the medications interfering with my cognitive skills. I had to have outside evaluations and go before a judge and a medical expert.....and my case spoke for itself. As they should. But along with my disability and the inability to do my job also came the inability to have any kind of life. I can no longer drive and am basically housebound. Every day that I wake up I am disappointed. Oh goody...another day of suffering......alone.

Mary N. said:

First of all, you did the correct thing by using an attorney -- trust me on that. The doctors used by SS (as many hove told me including my husband) are a joke. Just be honest with them. My husband has been on disability for chronic back pain for 11 years and it was his personal doctor's records that did the trick. In another case a dear friend of mine has fibroneurangia (sp). She tried without an attorney and was immediately turned down. She called me and I told her to get an attorney -- and within a few months she was before a judge and was granted her disability. Same thing with my brother-in-law -- no attorney the first time around and he is a double amputee. I am going to apply in June when we get back from our annual vacation because of the chronic postop headaches and pain at the mastoid bone site. I just want to make sure we are in town for whatever may pop up.

Just be honest - that is what got my husband and the others as well as having an attorney through the process. Best of luck and keep us updated.

Applying for long term disability is very different from applying for Social Security Disability Insurance but just as with SSDI almost everyone is denied and should always appeal. No matter what, never give up your right to appeal even if the process is frustrating and depressing. And NEVER miss a scheduled appointment or deadline. That said, long term disability is easier to get approved than SSDI. I worked with government employees applying for long and short term disability and I also received state disability retirement and both long and short term disability benefits on appeal without the benefit of an attorney.

Have you discussed your concerns about the upcoming appointments with your attorney? If you haven't, I'd call him immediately and when you leave a message for him to call you back I'd convey the urgency and your panic in your voice and what you say in the voicemail or the conversation you have with the receptionist. He doesn't get paid if you don't get awarded benefits and he's there to assist you with talking points and coaching. If you're freaking out, he's concerned. If you don't convey your worries, he may take his time getting back to you which reduces the time you have to prepare for the appointments. He's juggling a lot of clients and the squeaky wheel gets moved to the top of the pile.

NEVER meet with a representative of the insurance company, including their doctors, alone. Take someone with you such as a friend, relative, coworker or even a sympathetic supervisor. Make sure they understand they are there to support you and be your vocal advocate if you aren't or cannot effectively convey just how disabling the pain and other symptoms you're experiencing are. They can't be disruptive but they must be prepared to be your voice.

Start making a list right now of each of your symptoms, the date of onset ,if you know it, how severe it is and how it impacts your life. For example, the facial pain is so severe that just opening your mouth the slightest bit is just about more than you can bear. The pain meds barely touch it but without them it's so much worse. You've tried this, this and this but they haven't significantly made a difference. The pain is so bad that it keeps you from sleeping more than a couple of hours a night and when you do sleep, you keep waking up because the pain seems so much worse at night. It's so overwhelming and you're so tired from lack of sleep that you cannot focus, it's difficult to cope and you're so emotional. You weren't like this before.

Go over the list with your advocate well in advance of the appointment and be sure they have the full picture.

When you get to the appointment they may try to exclude your support person. Try to convince them that you get easily confused and overwhelmed and they'll sit quietly.

Be sure you get a chance to convey what's on your list. The doctor is there to examine you and to try to save the insurance company money but he should also give you a chance to provide additional information especially if he hasn't asked the right questions or given you a chance to elaborate. If it's becoming apparent that you aren't being given a chance, that's when your support person needs to speak up in a calm, helpful way.

If you think your person will become aggressive or angry, don't take them. Find someone else, even if that person isn't comfortable advocating for you. More importantly than having an advocate you want an objective witness who can sit quietly and observe. After the appointment both of you should jot down a summary of how the appointment went. Was the doctor adversarial? Did he give you a chance to respond to his questions or did he cut you off by asking the next question?

Believe me, his notes are going to say if you looked well dressed, were you calm and well spoken, relaxed even if you weren't. If you're tired and worn out with pain, don't wear make up and dress your best. Don't be incoherent but convey your fatigue and frustration with becoming more and more disabled. And his notes may be a complete fantasy of what was said and done in the appointment. You want to think they'll be objective and honest but I had two outright lie about the entire appointment including details of physical examinations that never happened.

The psychiatrist is going to try to determine if it's all in your head so be convincing. Let him know how hard it is for you to not be able to work anymore, how much you miss your job and how hard it is to change your self image from someone who had a future in your chosen field or with your employer and co-workers/friends to a limited income (disability pays a lot less) , the inability to participate in activities, loss of hobbies, etc. Be discouraged but don't have a total meltdown. Convey the impact of the pain and other symptoms on the quality of your life, your relationships with family and friends. If you're seeing a psychologist, tell him you are. If you aren't, say you're trying to find one who specializes in pain (they're excellent but few and far between).

Above all, remember: this appointment is important but it isn't the end all. It's only one part of the review and if the decision doesn't go your way, APPEAL, APPEAL, APPEAL. And immediately get a referral to another specialist and get their honest evaluation to support your disabling condition and definitely point out any discrepancies in how the insurance company's doctors conducted their examinations and what actually happened.

Good luck!

I applied back in December when the pain had gotten so bad I left my job. The amount of medicine I was on also made it hard to function and I was let go from one position. I got a letter last week from Disability turning me down because they said since I could still walk, see and was able to grasp things I did not qualify. I had alot of medical records from previous doctors and surgeons. I have been living off of my tax return and don't know what to do now the money is running out. Summer time is not as bad as the Fall and Winter time, which some of you are aware. So now, I need to find a job and work as long as I can until the pain gets worse again about the end of August early September. I have about 4 good months out of the year until the the whole thing starts again, and it is sooo bad. It hurts so much to have to talk. I don't know what to do, if I do any kind of work won't that definitely disqualify me from appealing? But if I don't do something I could lose my home, any suggestions?

I got turned down the 1st time because i was told “headaches” do not qualify for disability. Thats when i got a disability lawyer and did an appeal. Once he got all my medical records and submitted them he did his thing and won the appeal. But i had already been out of work for a while when the 2nd MVD failed to give me any relief at all

Just be yourself with the psychologist and be honest about how bad things are, no mask here.

With the doctor, the one I had just did his thing, was not the greatest doc.

Then they are going to look at the list of diseases that qualify for disability and see if the reports from your doctors and the results from their docs show that you are disabled and by how much and if you are at all able to hold a job.

The doctors do not decide any of this. Your adjutant will use the results in the determination.

This is how SSDI works in general terms. IF you are going through a company disability program, they differ so much it is hard to give you any idea on their workings.

You don't always get turned down the first time, I didn't. Did you get a call that previewed you and your disability to see if you should even apply?

The older you are, the easier it is because they think people over 55 have no chance of ever working again. That I refuse to believe,

Thanks Cherokee!! Appreciate your response ~br/>


Cherokee said:

Yes it is a long process. You will get turned down first time, and possibly 2nd time. But don’t give up.

It takes most hard working people about 2 years to get approved, me, it took nearly four.

And yes, these drs they send you to, a joke, but it is part of the process.

And there are some good case workers out there who are not attorneys and charge much less.

Hang in there…

Thank you Mary ~ will do!!



Mary N. said:

First of all, you did the correct thing by using an attorney – trust me on that. The doctors used by SS (as many hove told me including my husband) are a joke. Just be honest with them. My husband has been on disability for chronic back pain for 11 years and it was his personal doctor’s records that did the trick. In another case a dear friend of mine has fibroneurangia (sp). She tried without an attorney and was immediately turned down. She called me and I told her to get an attorney – and within a few months she was before a judge and was granted her disability. Same thing with my brother-in-law – no attorney the first time around and he is a double amputee. I am going to apply in June when we get back from our annual vacation because of the chronic postop headaches and pain at the mastoid bone site. I just want to make sure we are in town for whatever may pop up.

Just be honest - that is what got my husband and the others as well as having an attorney through the process. Best of luck and keep us updated.

Thanks for being so candid Linda ~ we need to keep each other informed and updated on our situations … Hopefully we can help each other get through this!! :slight_smile:



linreed said:

Hi,

I am in the process of doing this as well. Mine is private disability. It is not just for trigeminal neuralgia, but also for numerous other disorders. I am almost 63 and did not expect to be turned down. I am a professor. I was initally told I did not have TN, maybe a variant of it. I was given short-term for 8 weeks when I had TN surgery by Dr. Lim at Johns Hopkins. I am still on short-term. We hired an attorney and they are reconsidering long-term. I have gotten letters from my other doctors and we will see what happens. I am not really hopeful. I do think my attorney will have to keep appealing. My MVD surgery did not take care of the problems–I wish it had. It extremely aggravated my other problems specifically the cervical radiiculopathy. I would love if I could return to work in two weeks, but there is just no way I can. My university job is an online job and there is no way I could sit at a computer for 5 to 8 hours per day 5 days per week. My neurologist and pain specialist have said this. I also have difficulty with my corneas and I see my eye doctor tomorrow. He will say the same thing. I still think they will turn me down. Now, the university wants a letter from one of these doctors saying I can return to work. I am suddenly between a rock and a hard place. No one is going to say I can return to work when they have said I can’t do the job. It will take some fighting with an attorney to get it all straightened out and it is just not fair. Linda