I thought I was on remission (and perhaps on denial) till I had a seizure the other night, a bout with a heavyweight migraine that knocked me out and left me bedridden, weak and dizzy. I thought I was ready to give up my meds cuz I was feeling okay since last september. I don’t want to be popping pills after pills any more. I guess that’s not going to happen. I am dependent on my meds.
I got home from golf that day and I was feeling okay. At dinner while my husband and I were having our pizza, I started having a migraine headache ( which I always have after being out all day). I took a triptan and it usually works instantly but the pain became worse. I panicked which I usually do when I feel facial pain. I started hyper ventilating, I was having a hard time breathing. I was sweating bullets and feeling hot and cold at the same time. I was afraid I might be having pnemonia and meningitis. I wanted to be rushed to ER but my body says NO. I was feeling cold and too weak to get up. I preferred to just die in bed. My poor husband was at my beck and call. I asked him to turn the aircon off cuz I was feeling cold and then to turn it back on cuz I was hot. I asked him to turn the TV off cuz the sound was giving me a headache. It was neuralgia. I felt the facial nerve pains once again shooting from the gums of my teeth to the bones of my cheeks, burning. I hung on to my pain not wanting to go anywhere. My husband then laid down next to me and started caressing my forehead and I felt relaxed. But when he had fallen asleep, I persevered through my pain alone. The whole night was a nightmare and I endured it. The following morning, I felt weak, dizzy and wasted. I stayed in bed and forced myself to eat to have strenght. I took my lyrica as always hoping to feel better. On the third day, I could walk around the house but my legs felt wobbly and lame. Now and ever, it’s the anticipation of the pain that leaves me helpless and scared. There is nothing you can do when the pain attacks you. You just have to endure it and hope to live through it. I did it this time and knowing that it will come again, the thought of it is already killing me.
Veronica,
I am so sorry. A bad migraine happened the same day my TN came back and that began the period of my worst TN. My neuro said that most people who have TN also have migraines. Continue to take the TN meds and get rest. I hope this passes quickly.
Liz
oh gosh veronica, i am so sorry that this is happening to you. hang in, rest and try and sleep if you can. your in my thoughts and prayers. remember " this to shall pass"
im really sorry i wish i could get a break from the pain i have done how you decibed that since before easter everyday that same exact thing i wis i new what it felt like to hav a few days pain free but please if you found something that works please use i wish i could find something so badly im at my wits end good luck and stay with what works i wish everyday some thing would wrk for me
Holly,
You said after a day of activity (golf) you often get the pain. Me too. Do you think that is because our nerve has more pressure because of our heart rate increasing? How are you feeling today?
Jamie
@jamie leigh…yes, after a round of golf, I always suffer from my headeaches. I think I’m more vulnerable to pain when I’m outdoors. It’s the gusty wind, the sun shining and being tired altogether contributes to my headaches. But I only feel the pain after the game so I always have my sumatriptan with me and it takes care of it like magic.