Hi guys
I need some feed back. I had MVD a yr ago. I am experiencing severe TN 2 pain, twitching , dizziness and hearing loss I har several MR I s all which show nothing “remarkable”. I’m at my wits end. Trigeminal neuralgia has ruined my life. My question is simple what might be going on if my MRI is unremarkable ?
It took me more than one year to get down to 1% , rarely zapped
Give it a couple more months and get with your surgeon… Or a second opinion
I wish I had something more than support to offer you. I have not had an MRI yet (neuro visit in July). I wish you improvement and relief.
You might try bringing up this question with our MVD group.
The MVD’s Forum can be found at http://www.livingwithtn.org/group/mvds. for members who either have had, are having or considering having an MVD’s. Here members can share their experiences with those who are considering getting this done.
Edster, unremarkable mris are quite normal with TN.
Before and after MVD.
I know it’s so contrary to how we perceive things…“so much pain, something’s got to show up” but more often than not nothing does and that’s a good thing.
No signs of MS, Tumors or abnormalities causing your current symptoms…
I try to think of it as a process of elimination…
The theory behind compressions & MVD is valid. For many it provides long lasting relief for others just a little and for some none at all…
Why that is?
“We” just don’t know…
The vestibular issues should be addressed/investigated by an ENT as well as your neurosurgeon ( especially if they occurred right after MVD) sometimes during MVD, manipulation around the other cranial nerves can cause hearing/ dizzy issues. But it could be a medication or other cause, so best to check it out thoroughly.
I hope your TN settles down and that your vestibular issues resolve… Positive thoughts my friend! Let me know how things go…
Mimi