It's 4;04pm just thought I'd let everyone know how I'm doing. They did a nerve block on my occipital nerve this morning, which did nothing except numb the back of my head. So, I'm still getting shocks and have the fire/burning sensation on my face.
They're starting to talk about IV nutrition or a feeding tube, and I'm really, really scared. If any of you have experienced a feeding tube, could you let me know what it was like?
They haven't mentioned MVD yet, I think they want to try all the meds they can first, though. I just want the pain gone, so I'm being a bit impatient.
That's all for now, thank you for all of your support. <3
I'm sorry you are having to endure this extra crappola -- keep venting here - if you do need to get nutrition and healthy for an eventual MVD - think of it that way : )\
This is tough on you at your age, you must be super resilient, a good character asset for the rest of your life. Sad for you that the NB did so little for you. I have you in my thoughts.
You are all very, very kind. <3 I hope that the Doctors will be able to do more for me before sending me home. Thank you for your positive wishes, they do wonders. <3
hey hun, please dont hate me for saying this but i remeber being in hospital for my pain too and feeling so frustrated it was horrid..and the best advice the neuro gave me was, 'however you can, tell yourself in your mind, this hurts but i can cope, i will cope, it will pass, and it will not kill me. Your mind is so strong and the worst thing for a person in pain to do is focus on how unbelieavle there pain is because it greatly affects your coping until the help is at hand.'
He said that certain facial nerves can be the most sensitive to pain in the whole body and that he was acknowledging it to me. Just him saying that made me feel like i wasnt crazy, like someone looked at me and realised how shit and painful my situation was, not like people who could only guess roughly that i had a 'jaw ache'.
I acknowledge your pain, and im sorry that you feel cornered by it and impatient as you put it...just keep keepin on..we here all support you and wish for the pain to let us a.s.ap..until then, unless a dr needs some info from you..close your eyes and go to whatever place you need to go to, to cope with the shocks and try not to focus on how unreal your pain must be.
*big hug*
p.s No patronising intended at all, of you are already doing this then im glad for you, i can only relate from my own experiences of being to shocked that someone had to actually remind me about the power my mind has over how i cope with pysical feeling. x
