I remember I would always be so happy to listen to holiday music family friend's . Now it's sorry i dont feel up to doing that or going place's allway's tring to be possitive. Doctor's med's and their side effect's . Trying to understand the cause or for that matter what can relive it and for that matter family has no undrestanding of what they can not see Oh yea trying yo stay Possitive . Thank's NO MORE PAIN PLEASE!!
Hi Shirley. I’m having a difficult time with the holidays, too. TN and the meds just can suck the fun out if things.
Try to hang in there. Relatives might understand more than you think. I find even with my husband, they just need a reminder once in awhile. <3. Message me if you need to.
Shirley,
The holidays have not been the same for me this year at all, either. . . . just now, tomorrow, if I don't have a horrific flair up, going to shop for my kids, Christmas. I'm hoping it is a med side effect that my days and nights seem to be reversed, not indicative of a more serious health condition caused by the meds. On top of this, there is the pain. I know that no one wants to be a downer to others during the holidays. I've learned, though, that you MUST make yourself understood by those who are the closest to you. I've made all of these people, for me, read the Wikipedia definition of TN1 and TN2 online. I am TN2, but the TN1 explanation is more detailed.
If I have to go lie down for awhile, or am a little tired in the morning, or whacked out because of the meds I have to take, they all understand and cover for my a few of my responsibilities.
You must make your family understand what's wrong with their loved one. The holidays are about giving and togetherness. I believe you must communicate better to those around you what you are going through. They must achieve "understanding" of your pain, then perhaps you will have a bit of an easier time trying to aim for more "positive". Although, that is a real challenge in itself, but is easier with the proper moral support, which I get mostly from my Dad and fiance, and it seems that you are lacking in moral support.
I can almost imagine your pain due to your choice of words. My heart goes out to you. My prayers are with you. You had the courage to reach out to a forum to endeavor to make us understand your pain. I am certain you can, and MUST, make your family "get it". I hope that they find ways to make you as comfortable as possible.
If you find yourself not getting the moral support and understanding that you need, rest when you need to, take your meds as needed. Don't let anyone pressure you into an activity you don't feel up too! Take care of yourself first. Know that the holidays, too, shall pass, and that we're here for you too, if you need us.
All the best,
Stef
Stef Thank you so much for your time and advice It's been two year's since this pain hit me.Im praying it will be much more of a speedey recoverey. for you!! I do need that moral support we all do sound's like you have it that is great Iwould like just a little guess I found some Thank you prayer's with you Shirley