Hi all, i have long hair that i just love and are desperately want to keep it. I find with my TN that having it tied up triggers it. I can't have it down as i also have attacks ( hives go mad and i can't breath can swallow as everything swells up) if i get to hot so it is always tied up away from my neck/face. Many thanks for your reply's :)
Hi Puppyhound, I have had to cut my hair short because of the pain on my scalp. I know others have had this issue as well. The good news is that I am now starting to grow it out. So far so good. We shall see how far I get... Min