Hi everyone :) Thank you for the add, looking for thoughts

General General TN & GPN (Old Site)
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I'm not sure where I fit in anymore, at first I thought I had ON, but now I am thinking I have a bit more going on then just this. My issue started Aug 12 of 2013. I remember this day so well, cause my period started ( sorry for the TMI ), and my life changed forever...when this happened / the next 2 months I dealt with chronic lightheadedness, I did not leave me couch in those 2 months. I just felt like I was going to pass out every time I tried to do anything. My BLOOD PRESSURE was NOT the cause. Anyhoo, after 2 months if feeling faint, that completely went away, and then the back of my head was on FIRE, and I could feel the pain follow the paths of the nerves, over time this made its way to the top of my head, then forehead, the my eyes, and now my entire face. Both cheek bones will ache and burn, and my teeth ( upper jaw) will hurt. THEN..after a month or 2 of this..... everything moved to my thoracic spine all the way up to my shoulder blades, and back of neck, seriously if there is a nerve, it is effected. It bounces all over the place, now the newest thing that started a few days ago......... MY THROAT......burning from my throat and it feels like it is in my stomach too:(......... I just have no idea what is going on but I just feel like something snapped in my body, and now it hates me terribly. I just am so blown away that this is my life now. Not a way I really want to live. Looking for thoughts from y'all......what you might think. Thanks for any help

Missy

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Hi MCKMNL, nice to meet you. Have you sought medical advice or treatment for any of these issues? I would strongly encourage you to start with your gp and work your way towards answers from there. Document your syptoms and create a timeline to take with to your appts.make a few copies and start a binder and request a hardcopy of all lab work or letters from medical professionals. Take this to all appts. Memories can be fickle so I jot notes while in the office with my doctor. Keep us posted as to how things go for you. I wish you many pain free days ahead.

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I have already been seem by doctors. I went to Mayo clinic for chronic lightheadedness, and during my stay there I had brain NRI/MRA both w/o, and with contrast ( ALL GOOD) CT of my spine w/out contrat, cervical x-xray, loads of blood work, and auto immune testing. The thing is none of this was an issue during this initial testing. It all started after all this testing, so I am waiting to be seen by a neurologist, I go end of March, I was just wanting to know if this sounds like TN was all. sorry for lack of info

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also very exstensive cardiac work up....... all was ok