I recently posted about myself being in horrible pain and I still am to the point of not wanting life anymore and I am scared this pain will never end.
I called my neurologist and first never got a call back so I called several hours later only to here they want me to take more gaba. They never asked if something happened to trigger my painor anything else,and they sent me for lab work to check my tegertol level so they can increase it if levels are ok. So next day called about levels as I am not eating well hurts to chew, to talk and touch. When I called said would call me but again no call so I called right before closing on Friday to hear my levels won’t be back until Monday and basically there was nothing they could do. I said please I can’t be like this all weekend I am at the end of my rope I am taking Motrin 800 mg and Tylenol 1000mg every 4 hours and still pain. The nurse tells me there is nothing they can do, and we hang up. Now I never spoke with my neurologist herself never was asked any questions about what pain or what may have triggered it. I know taking that much Tylenol and ibuprofen too often over an extended time is very bad but what can I do… I need help any ideas that have worked for others. Is this how all neurologists are? Is there really nothing else they could do for me? It is not like I have ever called before for help, never called for pain meds or anything. I feel like I am being treated like a pill seeker for needing relief. Please if anyone can tell me anything I would appreciate it so much. I am desperately helpless and hopeless at this point.
I see that you have type 1, have you looked into getting MVD? What other meds have you tried? I had great relief from triliptal. Tegretol did not work for me.
I have heard that some TN patients go to the ER when in too much pain and can't see their
regular doctor.
Please keep us posted with the outcome .