Talked to Neuro today. Wait! let me interject. Ever since i was admitted to the hospital at the end of May, I am keeping a detailed log of my TN lately – when i take my meds, when i’m taking my next meds, when i have pain, how bad the pain is, what did i do to get the pain, if anying, etc.( My sister maid this very cool arm band thing for me that holds a tiny notebook and a small pen. I have my alarm on my watch (5 settings!) set to each time I’m supposed to teake meds, and i have my book and my pen rIGHT THERE! no more searching for it! ) Anyway, NOW, since Kathy led me to this site, I can blog everything about it too, mostly for me, but for other sufferers to know they’re not along! Thanks to all of you for the inspiration.
Back to it then! Talked to Neuro today. He has been my neuro from day won, November 12, 2006. Well, that’s the day I got TN. I first met with him about 2 weeks later. He is mostly frustrated that he has not “fixed” me yet. So, when I wasn’t better since the GKRS, even tho we all knew it might take time, it showed on his face that he was upset. Dr. Prall (surgeon) said that this could take from 2 days to 2 months to take effect (i always thot it could be even longer!), and so Dr. Wolff (neurologist) said in 2 months, if it’s not better, that he wants to set me up with the doctor that will do that metal wire surgery thingy. In the meantime, he’s going to put me on Trileptol again. Took that early on in the search for the right meds, and we’re trying it again. I think he’s desperate. he even said that he would love to put me back on Tegretol if he could. i said, maybe we could go with a lower dosage? he said, it’s my life! We’ll see. We’ve got plenty of other things to try first.
i know it’s early, but i have to say, from my notes in my handy book, and what i’ve noticed so far, my pain is a lot worse since the sugary. May not related, though. I am getting most of my pain at night, which is normal for me, but i’m also getting lots of breakthru pain in the morning and in the day time. What IS unusual is that I’m mostly taking my meds on time. usually the pain is because i forgot my meds! but this time it truly is breakthru pain. bleh.
me no likey!
i’m still hopeful, thought! as i waid before, plenty of other things to try.