Has anyone developed glossopharungeal neuralgia AFTER successful MVD for TN?
I’m a bit concerned that this is happening to me.
Christine,
Did you call your doctor? I'm sorry to hear this you have done so well!
Hi Christine,
I am really sorry that you are having symptoms of GPN after a successful MVD. I just wanted to let you know that there is a Ben's Friends community for GPN. You can find down the right hand side of this page. I hope you find some answers with your new symptoms.
I have TN but have also developed symptoms of GPN and ON. Unfortunately I guess some of us are very complicated.
Jane
Hello
I am experiencing severe glossopharyngeal pain 24 /7 My MVD tool place on May 3 2015- I am also suffering from burning mouth-I am not sure what to do ...
I have called my neurosurgeon, and will go to see him next month. In the meantime, I saw a neurologist, who thinks it is likely GPN, and put me on gabapentin. My GP wants me to see an ENT to rule out any ear problems, but I’m pretty sure it’s nerve related.
I don’t think this has anything to do with TN, or the MVD surgery. I have an Arnold Chiari malformation, which affects the position of the brain, so I, and my neurosurgeon, are pretty sure that is the cause .
I’m a bit disappointed that I am back here.
️
Hi Jane,
I did join the GPN group! It is certainly a drag to have to start on medication again, but I’m trying to stay positive.
We have some pretty complicated brains!br/>
justjane37 said:
Hi Christine,
I am really sorry that you are having symptoms of GPN after a successful MVD. I just wanted to let you know that there is a Ben’s Friends community for GPN. You can find down the right hand side of this page. I hope you find some answers with your new symptoms.
I have TN but have also developed symptoms of GPN and ON. Unfortunately I guess some of us are very complicated.
Jane