Help please!? I had an MVD in March of '14 and it quit helping my pain level 8 months later. Upped my meds but it wasn't much help. BTW I have both TN and ATN on the right side of my face. Well my neurosurgeon stated that the next best thing for me to try since I just had that one artery compression was GK. So I went to an oncologist he works with and they both informed me that they didn't know for sure if this would work but they felt confident that since my MVD worked on my TN pain for a while, then this would to. I had GK on Nov 12th, '15 and my pain has increased ten fold and now my left side of my face and teeth are now affected. Has this progression happened to anyone else? I am very much afraid of where this pain it taking me.
Osubucks1 ,I feel what you’re saying with the pain.I have felt like that many times ,but my son and God have kept me here .I am on 4 meds for tn and 2 for migraines ,the pain ia about a 4 in am but as the day goes by ,with talking ,eating drinking stress of any kind pushes me to a 9 or 10 …Please hang in there ,I am afraid of surgeries bc there is never a guarantee, and yes it can be made worse …I’m going to get the book Striking back ,but can only read a few pages at a time bc I wear glasses and have to wear them low ,so they don’t touch 1 or 2 nerve ,This really sucks to put it lightly.But I feel there is help from knowing ppl that have the same thing…Wish no one had to deal with this. .It’s extremely painful ,since I got it there have only been bad days and evenings …I love the am cause pain isn’t so bad …Stay blessed for the minutes you don’t feel so much pain …
Hello Liveinhope. the exact same thing has happened to me. After two MVDs I had GK in April 2014. Pain spread to other areas of face and I have GPN symptoms too. I thought I was stuck with this addditional pain but only in the last month or so the pain has reduced to just annoying rather than horrendous. Not sure if this is going to last long but I have been able to eat properly for the first time in years! Not sure if it has taken this long for the GK to work! I hope things settle down for you soon.
Thanks Osubucks1, Debra and Mary for your replies. I know it is wrong of me to find comfort in the fact I am not alone with this dreadful pain for I do not wish anyone to have to live with this condition. It is just nice knowing that I am not going insane and am not alone that there are others who understand. I woke up screaming this morning and my husband wanted to take me to the ER, but what can they do? I am allergic to opiods and codeine and several others. I do hope the pain settles down soon too. I have not read Striking Back but I have understood from others it is a great resource. I too feel I am running out of options, my next step might be acupuncture. And I am with you on celebrating and enjoying the less painful moments of the day. God Bless.