Is it just me, or at times of on/off pain - do others here have trouble getting to sleep? For instance; pain goes away, I lay my head on my pillow in a “safe” position (no trigger area - saying that, my TN isn’t necessarily cued by triggers) and am unable to get to sleep due to the act of laying my head down causing more and more pain.
I can only relieve this pain by sitting up and putting my backside in a chair where my head cannot touch anything.
So does this happen to anyone else?
I have just spent the entire of last night this - well persisted in trying to get to sleep for over the last 6 hours.
I’m OK as long as I lay on my right side. As soon as I turn on my left side zappers!
As you can imagine I wake up lots of times during the night just because I turn over. We have a barrier of pillows down the middle of the bed ( makes for a romantic atmosphere! ) because even my husband breathing on my cheek can set it off. I try and get wedged against them laying on my right side but it is not very successful.
I have an oxygen machine next to my bed because my attacks always occur when I’m sleeping. When I wake up with an attack, I put on the mask and crank up the oxygen machine and wait it out. If it doesn’t go away in a few minutes, I get my Imitrex nasal spray and use it.
For some reason, the oxygen seems to calm the Trigeminal nerve.