Gabapentin

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1

The day after I was diagnosed with TN and put on Gabapentin, I had to fly to Hilton Head for a convention. While on the plane I started breaking out in blotches and itching. Its an hour and half flight from Wichita to Atlanta and another hour to Savannah. By the time I arrived at my destination I was miserable. I started popping Benadryle like Pez. Unfortunately this had an adverse affect to my attendance at the convention. After day 3 I had to get a shot and wait until I get beck to Wichita to find a new drug to help with the TN.

This wasn't the only time I had an allergic reaction during the guinea pig phase of TN. This also happened last September before Frank and I flew to Vegas. I had been given a new pain med, the next day I was on a plane in misery. New rule for me...NO NEW DRUGS before I fly!

My doctor explained I am finding so many new drugs I have an allergic reaction to because we are trying so many new drugs.

Anyone else find they are allergic to just about everything since they were told they had TN?

2

Oh yes, Bobbie. See Karen's discussion. I was allergic to everything except Gabapentin.

3

I was just reading her discussion. Seems to be the topic of the day.

4

Never been on it but I thought I read somewhere that Oxy-carbamezapine is the alternative to people who are allergic to the regular carba (Tegretol). Because of liability they don't really advertize they are a non-allergenic version, but I think that is supposed to be part of the design.

I could be mistaken.

Elaine

5

Bobbie, I have tried so many of the meds. I’ve had severe reactions to several of them. The Lyrica was the worst, and Tegretol was second. I ended up in the ER both times with Tegretol and I don’t have insurance. I’m steady on a combo right now, and planning on staying here. I feel like a rat in a cage with all the meds they have tried on me. I really understand.

6

Hi! I was diagnosed with TN 3 weeks ago and have been on Gabapentin for 2 weeks. I can’t tell that it is helping with the pain. I was originally on 300mg per day and my Doctor said to increase it to 900mg per day. The one side effect I’m wondering if anyone has noticed is a big increase in my appetite. I am always hungry and eating…eating…eating. Has anyone else experienced this? Thanks!