Hi everyone,
I just had my first neuro appointment in ten years today and he perscribed me Gabapentin (Neurontin) to treat my TN. I was just wondering if anyone else has taken this medication. Did it help? What were your side effects? How long did it last?
Thanks So Much
I replied to your blog post, hope it helps, (( hugs )) Mimi
Hi
I have taken Neurontin for the past 18 months. I have ATN, and it works well on the shocks, and less so on the burning boring pain. I have had very few side effects. The only one I would mention is that occassionally makes me a bit dizzy. I hope it works for you.
Good luck!
Next time you talk to this doc or nurse… Find out how many patients like you … Very important. : )
Hi there! I am currently on Gabapentin. I started it two months ago. The first dose helped but then the pain came back so we brought my dose up and it helped again but the pain came back. It DID help manage the pain better but now after 2 months I'm getting the harder pain back. My side effects on Gabapentin were surprisingly none except my brain was a little slow sometimes. I would stutter over my words, but that passed after a couple weeks. I took carbamazepine before that and that had horrible side effects. So I found Gaba much easier on my body...and I'm small and am super sensitive to drugs. I hope it works for you!
I did not do well on this med.
I have been on gabapentin for about a month. It helps some. It made me dizzy and a little spacy but that did not last for more than a few days while my body adjusted to it. Overall I am pleased with it.
Have been on Gabapentin for 7 years and while I still have some rough break through pain days, it has all and all been a life saver. I have had to increase dose over the years, but only med I have ever taken. No side effects, except when I am grumpy I blame it on the meds, grin. But seriously, has helped me!
I have to keep remaining myself that the doctor wants you to feel better as much as you do. He wouldn’t have prescribed it if he didn’t feel you needed it:)
So today was day one of the medication. I feel really weird, extremely tired, and have become very irritable. That and now I have this pressure at the base of my skull. It hurt so bad! Has anybody else had this pressure?
Did you get any lidocaine…so you can take smaller doses of meds?
Also, for feeling weird or side effects your best question is the pharmacist where you got it…or any pharmacist will always answer before the doctor… And they know more than the doctor, of what these meds do.
Yes, I have been on gabapentin one time. It helped me. It was used in conjunction with trileptal. I hope that it will help you
Gabapentin alone did not TOUCH my pain. However, gabapentin plus large amounts of carbomazapin did the trick. I still have break through pain, however.
update on my condition:
http://www.livingwithtn.org/profiles/blogs/i-m-losing-my-mind-literally
So the doctor contacted us today and he said he wants to put me on Tegretol and see how that goes. Has anyone had experience with this drug?
I just started it a week ago and so far so good. The pain seems to be a little better but everyone I have talked to says it takes time to build up in your system. I have said a prayer for you.
Tegretol is like trilepetal. I tried trilepetal, gabapenin, and then lyrica… Then I got the ok for MVD.
tegretol will probably make you tired, make you not able to find words, and memory is less.
Put it in the search box…thousands of postings here about it.
DID YOU ever get the lidocaine patch for instant relief yet?
I was on Tegretol for a year and a half. It certainly worked. What I found was that the TN worsened and I needed to keep increasing the doseage and eventually I needed a MVD. I hope it works for you
Pixelkam said:
So the doctor contacted us today and he said he wants to put me on Tegretol and see how that goes. Has anyone had experience with this drug?