Essential GPN reading

This page was the single most comprehensive GPN information site that I’ve found online.

I thought we could maybe add a discussion thread with all the best links? Purely because I’ve not found out how to arrange it as a "sticky!"

Hope it’s of interest to you folks

Gracie x x x

thanks! i loved that and am going to post it actually to my f book page because people dont understand what it is.

i read this article early on in diagnosis very very informative

Okay folks, here are some new ones I’ve come across, just thought I’d share them out with the choir ;o) x x x
good article
this article details that if pain is not limited to the pharynx then intracranial surgery is the only option- they don’t normally tell us that, so I thought that was REALLY interesting.
here’s another but probably nothing new to be gleaned but I hadn’t read it before so here it is
this one pretty much says “cut it ye buggers cause you wont get proper relief otherwise, and the other ops are bound to fail you eventually”
cardiac glosso- interestingly articly mentions still using muscle in decompression surgery, didn’t think they did that anymore cause it either dissolved or turned into gnarly scar tissue, I can’t remember which- either way I didn’t think it was the norm any more.
when MRI shows nothing it can still be there!
this one says have the MVD it’s great, it works, it keeps working, good follow up etc
this one says we’ll give you a rhizotomy, but only if you have cancer, cause we can screw you up a bit too much otherwise
more detailed version of the GPN and ketamine thing
TN/GPN combi patient article

Sorry for the paraphrasing, but if nothing else it keeps me right!

Hope it’s of some use to someone, I found them really useful tonight. x x x