This page was the single most comprehensive GPN information site that I’ve found online.
http://www.sma.org.sg/smj/4010/articles/4010ra1.htm
I thought we could maybe add a discussion thread with all the best links? Purely because I’ve not found out how to arrange it as a "sticky!"
Hope it’s of interest to you folks
Gracie x x x
thanks! i loved that and am going to post it actually to my f book page because people dont understand what it is.
i read this article early on in diagnosis very very informative
Okay folks, here are some new ones I’ve come across, just thought I’d share them out with the choir ;o) x x x
http://imigraine.net/other/glosso.html
good article
http://www.merck.com/mmpe/sec16/ch219/ch219j.html
this article details that if pain is not limited to the pharynx then intracranial surgery is the only option- they don’t normally tell us that, so I thought that was REALLY interesting.
http://www.ninds.nih.gov/disorders/glossopharyngeal_neuralgia/glossopharyngeal_neuralgia.htm
here’s another but probably nothing new to be gleaned but I hadn’t read it before so here it is
http://neurosurgery.ucla.edu/body.cfm?id=161
this one pretty much says “cut it ye buggers cause you wont get proper relief otherwise, and the other ops are bound to fail you eventually”
http://journals.cambridge.org/action/displayAbstract
cardiac glosso- interestingly articly mentions still using muscle in decompression surgery, didn’t think they did that anymore cause it either dissolved or turned into gnarly scar tissue, I can’t remember which- either way I didn’t think it was the norm any more.
http://www.ajronline.org/cgi/content/abstract/191/2/578
when MRI shows nothing it can still be there!
http://www.ncbi.nlm.nih.gov/pubmed/15046654?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed
this one says have the MVD it’s great, it works, it keeps working, good follow up etc
http://www.mayfieldclinic.com/PE-PSR.htm
this one says we’ll give you a rhizotomy, but only if you have cancer, cause we can screw you up a bit too much otherwise
http://www.ionchannels.org/showabstract.php?pmid=9257324
more detailed version of the GPN and ketamine thing
http://www.ajnr.org/cgi/content/full/27/3/705
TN/GPN combi patient article
Sorry for the paraphrasing, but if nothing else it keeps me right!
Hope it’s of some use to someone, I found them really useful tonight. x x x