Hello! I was recently told that I now should be consulting with a surgeon and was wondering what the surgeries were. If people could list them, what they do, side effects. I want to be educated before I go. It is very scary to me but this pain is never ending. I cant sleep, I cant eat, and it is unbearable. Any help is appreciated!
Hey Chrisa,
Hope you're doing well, I can understand the wanting to be educated when you're looking at something like this, it's no small decision. Here are a few links about what gets used for this, they may or may not be of help to you
http://www.livingwithgpn.org/forum/topics/which-procedure-for-each-type
http://imigraine.net/other/glosso.html
good article
http://www.merck.com/mmpe/sec16/ch219/ch219j.html
this article details that if pain is not limited to the pharynx then intracranial surgery is the only option- they don't normally tell us that, so I thought that was REALLY interesting.
http://www.ninds.nih.gov/disorders/glossopharyngeal_neuralgia/gloss...
here's another but probably nothing new to be gleaned but I hadn't read it before so here it is
http://neurosurgery.ucla.edu/body.cfm?id=161
this one pretty much says "cut it ye buggers cause you wont get proper relief otherwise, and the other ops are bound to fail you eventually"
http://journals.cambridge.org/action/displayAbstract
cardiac glosso- interestingly articly mentions still using muscle in decompression surgery, didn't think they did that anymore cause it either dissolved or turned into gnarly scar tissue, I can't remember which- either way I didn't think it was the norm any more.
http://www.ajronline.org/cgi/content/abstract/191/2/578
when MRI shows nothing it can still be there!
http://www.ncbi.nlm.nih.gov/pubmed/15046654?ordinalpos=1&itool=...
this one says have the MVD it's great, it works, it keeps working, good follow up etc
http://www.mayfieldclinic.com/PE-PSR.htm
this one says we'll give you a rhizotomy, but only if you have cancer, cause we can screw you up a bit too much otherwise
http://www.ionchannels.org/showabstract.php?pmid=9257324
more detailed version of the GPN and ketamine thing
http://www.ajnr.org/cgi/content/full/27/3/705
TN/GPN combi patient article
Sorry for the paraphrasing, but if nothing else it keeps me right, I hope you find some relief soon.
Much love as ever
Gracie . x x x
i appreciate all this and am going to be reading it thank you!!!