Does anybody know a neurologist in the Portland, Oregon area who specializes in TN whom they would recommend? I need a neurologist who accepts Aetna insurance. Thanks very much!
Nevermind, I've found one-Dr. Kim J. Burchiel. My doctor is working on a referral. Thanks anyway!
I met Dr. Burchiel. I think he knows his stuff. Diagnosed my TN 2. I liked him a lot.
He is said to be the most knowledgeable of TN. My dr studied under him.
I've gone to him. Liked him, and agree with Camia, he" knows his stuff". MVD done.
Did he do your MVD? Did you have TN2? What was your experience, side effects, results? He recommended that for me and gave me 50/50 odds of it being successful.
thanks
Camia
He did do my MVD. I had TN 1 and TN2 or atypical, I'm not sure which. He told me going into thinking about surgery that it would help TN1, but we could only hope it would with TN2. He was right, it helped with 1 but not with the other. I saw him at last years San Diego's facial pain conference, where he spoke, saying that he used to think surgery was the cure all for type 1, but after following patients for ten years, he saw that that there was a recurrence of some pain beginning at the 5 year mark and by year 10 it quite often came back full force. Not with patients all, but enough to make him start doing gene research with two other dr's . Dr. Burchiel is good, this coming from a RN.
Wow! interesting observation by Dr Burchiel. He had told me that TN 1 had a very high success rate with MVD, TN2, no. If I do ever decide to do the surgery, I will most likely go to him.