doctor put me on this trying to get me up to 1200mg and I get so dizzy i can hardly walk, they tell me to just stay with it or live with the alternative anyone having this situation how long does it take to get your system use to it this is a nitemare, i've missed work and so dizzy couldn't walk much
you may have to go up on the dose slower---AND not everyone can take this med
--- your doc should give you options -- if you have type 1 -- this is a good med to kill pain - but not at all costs -- call your pharmacist - ask what to do
Actually I would get a new doctor - because that one is totally unprofessional ---- more will chime in here soon
Unfortunately I've experienced this cavalier attitude all too often with traditionally trained docs and prescription meds. I am only speaking of my own experience and am not a medical professional, but I would encourage you to find a doc who will taper your dosage to one that you can tolerate.
Context: I insisted to the neurosurgeon I was allergic to neurontin as they had given it to me 10 years prior for migraine. I reluctantly agreed to try it again for TN but only on the condition that I could start with 25 mg and have that compounded. Second time around, same severe allergic reactions and seizure like complications.
I currently take a very old Rx called Elavil for my TN with meh results, but cheaper and helps my depression about this condition, too. Try Googling a blog called How to Talk with your Doctor about Chronic Pain. Really helps to find someone that will COLLABORATE with you on your health.
Good points Kc! My Dr had me taper up by 100mg per week. It does take a long time to gain relief but it is not such a shock to the system. 1200 is quite a good size dose. Keep us posted, I feel for you. Earlier in my TN journey a Dr did something similar to me, it was horrendous. The room swam, I could barely function. That said Tegretol/Carbamazapine is excellent at tackling the pain in those it suits.
If you can't stand it please don't put up with things that you don't need to. If one drug doesn't work for you then there are probably others you can try also. I am "putting up with" side effects with the medications I am on but they aren't affecting me in a way that is unbearable or that I can't do usual daily activities. I have put up with things in the past that have got worse and needed hospitalising - my body didn't "get used to it" at all. So I battled weeks of side effects for nothing. We already suffer in so many ways - we don't need to add in nasty side effects to that!
i was given tegratol and was put almost straight away on 2x100mg 4 times a day!! i was pretty much drunk!!! all the signs and symptoms of a very very drunk person, couldnt walk very well, room spinning, double vision! the lot!! this was because i was having such crazy pain and no pain killers were coming close to getting rid of it so my dr said try a high dose! on returning to the dr the reduced me to only 2x100mg per day!!! what a massive decrease hey!???? and the pain was awful, but very very gradually the side affects reduced and i put up with the pain, then i was given solpadol pain killers for the awful headaches i was getting and slowly i increased my dose, over a 2/3 wekk period! i am now back on the maximum dose and after 4 weeks on medication i had my first good day yesterday and then today!! i am on like i say, the above but also 2 amitriptyline per evenign too, so that 18 tablets per day!! with some pain, aches and burning sensations through the day. so i would say stick at it, maybe reduce the dose and then increase them gradually!!!
take care
Chloe