Lately I’ve had a flare up of my TN. Increasing my meds and changing to extended release made the Type 1 (I have only Upper nerve) go away for now but now I am having flare up of the Type 2 (I have only in the middle nerve). No medication will help except nortryptaline (and desiprimine to a lesser degree) but these give me very severe side effects- mainly inability to speak and involuntary jaw and facial muscle movements that I am told may become permanent.
So here I am up all night feeling like I was repeatedly hit with a baseball bat on my cheek and now someone is crushing and pushing in that area as hard as they can. I take extra meds plus lots of pain meds and haven’t been able to sleep until almost time to wake up in morning. Yesterday my adult daughter woke me up at because apparently I finally fell asleep about 30 minutes before I had to wake up my 10 year old for school and now we were late.
Any other unwilling night owls out there?
Any suggested type 2 TN medications/remedies/help?
Most of the time my meds make me very tired and I sleep, but sometimes I have insomnia for 2-3 nights in a row. When that happens I take a flexeril for 2-3 nights to get me back to sleeping.
Interesting- I usually am so tired too so I was amazed I was awake for so long. I’m allergic to flexeril, but I do take a soma at bed because only way to relax hips enough to lay on them from fibromyalgia. I used to take baclofen sometimes too & long time ago had another muscle relaxer but can’t remember name- going to pain dr in couple hours, I’ll ask him.
I have been zoplicone every night for almost four years. I don’t know what it will do to be in the long term but it was a case of sleep or no sleep. I have fibromyalgia too so I understand the sleep issues. No sleep, or bad sleep exacerbates pain.
Doc kept me on same pain meds for all my issues (narco, methadone, soma for sleep) and added lidocaine patches for face. Only prob now is insurance not paying for patches but hoping discount card or program will. CVS is very good about finding discounts for me since I practically live there and probably buy half there inventory LOL!
Will ask about zoplicone if continued sleep issues.