Can you have both types of TN?

Hi Everyone, just a quick bit of advice. I must apologise for my writing my laptop has sticky keys which get stuck so I dont always type correctly.:-(

got diagnosed with TN October last year by my own doctor, he then referred me on to a neurologist at the hospital . I think I saw a newly qualified one as they have a habit of sending you an appointment to see a neurologist then when you get there you are seen by one of his 'team' which to me means someone who assesses you first then if you are deemed serious enough the main consultant will then take you on. (I have experience of this with my chronic plantar facciitis, 4 years later and Im only just getting to see the senior orthapaedic consultant but thats another story....) I had an MRI last weekend but have to wait until April for my next appointment to get the results.

This is my story, I have had sharp, random attacks on my ear for years but very sporadic. At first maybe once every 6 months. If I would move my head in a certain way or wash my face in a certain area and I would get the most excrutiating pain just at the tip of the entrance to my ear and if I touched it, the pain would be unbearable, this would last seconds, maybe at its worst a couple of minutes then go completely.

This gradually over the last year got more frequent, starting off with the stabbing electric shock like pain then 6 months ago after the stabbing pain started it would continue with the pain which lasted for hours around and underneath my ear. I knew something wasnt right when it lasted a whole night and I , It took 3 doctors at my practise to diagnose TN the first two didnt have a clue what it was, luckily the third doctor was more experienced and knew from my symptoms it was TN.

I am still a bit confused as to the two types of TN? I thought one was the stabbing pain, and the other was the pain that lasts longer ? I still start off with the sharp pain which stays in my ear but I also have the earrache type pain around my ear too. is this normal?

Dear Ann,

Yes, you can have a combo of the two types of TN.

I hope these links work. I just tried them and I cannot access the pages. However, the Wikipedia description defining the two types of pain, that of ATN , or Type II and TN, Type I, most clearly defines these the differences between these conditions, in my opinion, for whatever it is worth. I have tried to include the links from the bottom of the page. If they do not work, it is easy to run a search. Just type in "Wikipedia Atypical Trigeminal Neuralgia", or "Wikipedia Trigeminal Neuralgia" . There is a link to each page from the other too within the body of the text on the subjects.

Whenever I read the Atypical Trigeminal Neuralgia definition, I cried with joy, because I am textbook example of a patient who experiences exactly this type of pain. However, recently I have developed some electrical current type shocking pains, which are characteristic of Type I, or Classic TN. Trigeminal Neuralgia (Type I) , or Classic TN, has a better track record of surgical success, as I understand from reading A LOT of material and speaking to others who have tried different treatments!

By the way, the electrical shock type pain which I have begun having definitely radiates from somewhere around my ears. I just thought I would mention this, since you mentioned having ear pain. Sometimes, I have sharp pains which radiate from my inner ear. I am not sure if the ear pain is ATN related. I am pretty sure that the electric current quality pain is related.

Neurontin helps with electric current quality pain. However, the only relief I have ever found from the other symptoms hasn been strong pain medication. I've tried a lot of alternative therapies to no avail.

I hope you are able to access these from the copied links below, if not, it is easy to look up.

I hope this helped.

Best wishes to you for informed and compassionate care,

Stef

http://en.wikipedia.org/wiki/Trigeminal_neuralgia

http://en.wikipedia.org/wiki/Atypical_trigeminal_neuralgia

Thanks for the replies :slight_smile: