Hi Everyone, just a quick bit of advice. I must apologise for my writing my laptop has sticky keys which get stuck so I dont always type correctly.:-(
got diagnosed with TN October last year by my own doctor, he then referred me on to a neurologist at the hospital . I think I saw a newly qualified one as they have a habit of sending you an appointment to see a neurologist then when you get there you are seen by one of his 'team' which to me means someone who assesses you first then if you are deemed serious enough the main consultant will then take you on. (I have experience of this with my chronic plantar facciitis, 4 years later and Im only just getting to see the senior orthapaedic consultant but thats another story....) I had an MRI last weekend but have to wait until April for my next appointment to get the results.
This is my story, I have had sharp, random attacks on my ear for years but very sporadic. At first maybe once every 6 months. If I would move my head in a certain way or wash my face in a certain area and I would get the most excrutiating pain just at the tip of the entrance to my ear and if I touched it, the pain would be unbearable, this would last seconds, maybe at its worst a couple of minutes then go completely.
This gradually over the last year got more frequent, starting off with the stabbing electric shock like pain then 6 months ago after the stabbing pain started it would continue with the pain which lasted for hours around and underneath my ear. I knew something wasnt right when it lasted a whole night and I , It took 3 doctors at my practise to diagnose TN the first two didnt have a clue what it was, luckily the third doctor was more experienced and knew from my symptoms it was TN.
I am still a bit confused as to the two types of TN? I thought one was the stabbing pain, and the other was the pain that lasts longer ? I still start off with the sharp pain which stays in my ear but I also have the earrache type pain around my ear too. is this normal?