Day 14 of face pains. I feel like a total lost cause and I’m scared to talk, move, speak, breathe, go out, brush my teeth or my hair because I don’t know what my triggers are!!! I’ve had this since I was 11 years old, almost 20 years and I have had more meds than I can count. Each time I come out of remission the episodes are longer and more painful with a ton of crap added on like headaches, heartburn, irregular sleep patterns etc and I just feel tired of being tired. I’m seeing my doctor tomorrow and hopefull pushing for the op. I start my dream job as a teacher next week and I’m getting married in 11 months and I don’t want this horrid disease to ruin my life any longer. In desperation for an outlet to talk to others and to vent this frustration I have found this site. Reading your blogs hasn’t taken the pain away but it sure has lifted my spirits. Thankyou x
Welcome Laurie!
I know that finding LwTN was a blessing for me! Everyone hear has an understanding beyond measure of what we experienced, it helps us all feel less alone…
I urge you to repost this on the main page under “discussions” as it will be viewed by more of the community and you should receive more replies as a result.
Congrats on becoming a teacher and on your upcoming wedding! Exciting year for you! Hope your doctors appointment went well!
(( hugs )) Mimi
Screw the hair (can I say that)! My face and hair are dirty all the time, ha ha. I am young and have extra crap too, and I do like you - live life normally and try to get a dream job (when I finish my PhD and become the darndest working researcher there ever was). There is no way this #%€${$£!! THING is getting the best of me, and I feel it is much better to pretend it does not exist. Hardly anyone knows. They all think I am such a party pooper who goes home before the bars are too noisy and who does not drink much (bloody carbamazepine), hahaha. 
May I introduce you to lengthy, addictive tv series that don’t make you laugh? I just watched the entire 11 or so seasons of Grey’s Anatomy with the lights off. Best distraction ever! I especially liked that they are tough women who have to deal with a lot and sleeps 4 hrs a night. I went straight to its spinoff Private Practice, not so addictive tho and only 6 seasons.
Am I hogging your blog yet?
Two things before I go:
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What did your doc say about surgery?
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Congratulations on getting married and the dream job!