The more I think about it and read about all the hurt and pain and difficulties in the TN community here, on the TNA site and on FB, the more it weighs heavily on my heart to start a charity of some sort for people with TN or just plain old facial pain and try to help others with TN. There are so many things we all struggle with here besides the physical pain.
Financial problems are one of the biggest issues: people losing their jobs because of either the TN or the meds we must endure for the TN, surgeries taking their toll, lack of disability insurance to cover bills, no way to get Social Security because they’re moronic and don’t get it either “it’s subjective!” So no funds coming in… we have to live with others who love us, fortunately, but they don’t understand why we can’t do something around the house, like clean, for possibly days on end, why we are curled up rocking back and forth in bed or on the couch, unable to even watch tv or read; people who have used up all their sick time; people who have lost their disability insurance for the same reasons we can’t get social security; people who have lost their homes, cannot pay their bills, can’t get health insurance, or good health insurance, etc. You get what I’m saying… financial assistance.
Obviously emotional problems with family, and friends, people who just don’t and won’t get it: they might need counseling or family counseling, or just times to get together with other TNers so we don’t feel so alone–a physical version of this site.
Driving assistance: we need people to drive us to and from doctor appointments, hospital visits, work if we can keep our jobs, etc.
Maybe the TNA (er… FPA) already provides all of this, but I don’t think they would pay our bills for us… i mean, with a charity could people apply to receive financial assistance and get it? Based on what? I have NO clue how to even start one. And could I even do it? it seems like my word usage is a bit better, but it took me about 10 minutes to come up with the word “disability insurance” and I have been working on my own appeal for disability insurance for 6 months!! Have been getting it for 1-1/2 years before that!! So… i still have pain and other problems. i fall asleep ALL the time, have a lot of trouble with that still. But, if I can get better, or healed, this is what I want to do.How would I pay myself? From a foundation? Who would give money to that? So many questions. 
anyway, it’s on my heart, something i think about on a nearly daily basis. I NEED to start praying about it so it will happen if it’s God’s will. Help me pray about it, will you? Join me? 
Thanks all!! Love you!