Does anybody else experience flu-like symptoms, if you do too much? I find that if I have a full day of activity, the next day or 2 I am wiped out and sleep for hours with body aches. Not to mention huge flare-up with face pain. MB
I do … I figured it was from a secondary underlying issue . I’m trying to test for a bunch of stuff with my normal Doctor . Have you had any other testing done
What kind of testing,for what? I've had several MRI's and CT scan. They did test for Lyme Disease and that was negative. I wonder if it's related to TN. I do know that this chronic pain is exhausting. I can't seem to do too much anymore.
I'm working full time but come to a "wall" every night about 8 - 8:30 PM. I know for SURE I have to go to bed by 8:30 or I really struggle the next day. I don't have flu like symptoms, but just very exhausted. Its either the meds or the TN. My TN is pretty well controlled right now, its just the meds driving me mad at the moment. I feel drunk, loopy and tired most days. Plus I'm careful with walking cause I feel "drunk" like I said so I feel stumbly at times.
BTW, I take carbamazepine 400 XR twice daily and 600 MG gabapentin twice daily.
I need 9-10 hours of sleep every night.
I'm very wobbly too from the meds and loopy! I'm on 300mg of Dilantin and 75 of Effexor. They don't seem to be doing much at the moment. I will see the neurosurgeon on the 24th to follow up on a MRI. The online report says unremarkable. I hope he can still help me.
I find that I MUST get 7-8 hours of sleep a night. I have to make myself get off this computer! LOL I take a low dose Percocet all day for a herniated disk -- my arms & hands get numb and painful and the Percocet helps. if I don't take it, I hurt so badly that I can't type or play the piano, both of which help me earn a living. I take Amitriptaline at night. As long as I get enough sleep, the pain in my face is kept calm. Still there, but not debilitating. Not sure if its the meds, the condition, or my age (50) and in perimenopause. Whatever the cause, I just have to realize that I can no longer do, do, do as I always have. So I now spend a lot of time on the computer and make myself turn it off by a certain hour. Self-discipline! And learning how to say, "No, I'm sorry, I can't do all that" ... That's something I never thought I'd hear myself say ...
I am 49 and this has been going on for a year. The one good thing is that it has given me the ability/excuse to say,"no" I've always had a hard time with that. I'm an artist and paint standing up. I can't work as long as I used to. I understand Cindy Lou!
CindyLou said:
I find that I MUST get 7-8 hours of sleep a night. I have to make myself get off this computer! LOL I take a low dose Percocet all day for a herniated disk -- my arms & hands get numb and painful and the Percocet helps. if I don't take it, I hurt so badly that I can't type or play the piano, both of which help me earn a living. I take Amitriptaline at night. As long as I get enough sleep, the pain in my face is kept calm. Still there, but not debilitating. Not sure if its the meds, the condition, or my age (50) and in perimenopause. Whatever the cause, I just have to realize that I can no longer do, do, do as I always have. So I now spend a lot of time on the computer and make myself turn it off by a certain hour. Self-discipline! And learning how to say, "No, I'm sorry, I can't do all that" ... That's something I never thought I'd hear myself say ...
Yes I get this. I have been pain free for some time now, however the fatigue and constant body ache is still with me. I found out last year that I have under lying auto immune problems and as anyone with autoimmune will tell you, fatigue is always there. I put it down to TN and the meds I was on but a flare up of TN amplifies it ten fold. I’m no good to anyone if I do a very strenuous day for the the following week. If I go easy I’m Ok up until 2 or 3. After that it’s an effort to do the mundane things that need to be done every day.
I've always thought the fatigue comes from the pain. It's exhausting being in pain all the time. When I have an episode that lasts days, a week or longer, I become more and more tired with each passing day. It reaches a point where I can't get out of bed. All I can manage is to lie there. But it doesn't help to spend the day in bed. As long as the pain lasts is how long the exhaustion lasts.
I have to make sure I go to the grocery store on the days I feel good and stock up on food because I just can't make myself go when I don't feel well. And silly me LOVES the grocery store!
suzi said:
Yes I get this. I have been pain free for some time now, however the fatigue and constant body ache is still with me. I found out last year that I have under lying auto immune problems and as anyone with autoimmune will tell you, fatigue is always there. I put it down to TN and the meds I was on but a flare up of TN amplifies it ten fold. I'm no good to anyone if I do a very strenuous day for the the following week. If I go easy I'm Ok up until 2 or 3. After that it's an effort to do the mundane things that need to be done every day.
I'm the same way. I have to just lie there with ice on my eyeball until it passes.
Karen Brown said:
I've always thought the fatigue comes from the pain. It's exhausting being in pain all the time. When I have an episode that lasts days, a week or longer, I become more and more tired with each passing day. It reaches a point where I can't get out of bed. All I can manage is to lie there. But it doesn't help to spend the day in bed. As long as the pain lasts is how long the exhaustion lasts.