Hello everyone,
I’ve been gone fire a few months trying to get some answers but now I’m at the end of my rope and and I need some second opinions from people who care.
So I’ve had TN for ten years and in September I had an awful flare up that lasted until December. In that time I had some pre syncopatic(fainting) episodes in class where my left eye snaps shut and I lose control of the left side of my body and nearly faint (I have all the symptoms of fainting minus the blacking out). Since then I have had worsening neurological symptoms such as left sided weakness (hand and leg. Enough that I have a foot drop and drag my foot when walking) shooting pains up the back of my neck (stimulated by turning my head the wrong way or too fast) and a problem with my eyes where they jerk away from what I’m looking at. All of them are getting progressively worse and now the weakness is spreading to my right side (I’m an art student so I need my eyes and my right side).
I have been through two neurologists who could care less who say it’s all in my head, my PCP believes me but isn’t certified to help, and a rheumatologist(the friend of my PCP) who is going to try to help but doesn’t know how. I also went to an optometrist who said I need to see a neurologist but the neurologist is the one who sent me to the optometrist!!
My brain MRI was normal (from October). I’ve also had a c-spine MRI which didn’t show anything but some slight degenerative disk disease. All my blood tests are normal (no Lyme,lupus,etc) and I had a negative Emg.
If anyone can help me I’ll be eternally greatfull. Right now it feels like my life is falling apart, all my plans for the future shot. I need some answers or suggestions desperately.
Thank you in advance for the help