Tegretol is so terrible.My poor wife thought i was completely losing my mind.I would trail off in mid sentence struggling to remember what a iron was called or something just as simple.I have been off it for a year now and am vastly better,but still have trouble finding common words sometimes.But if it's unbearable pain or be a little goofy with somewhat less pain,i would still take the latter.
Here is a good one for you. I was telling my hubby about an article in a magazine we had just received. He asked which magazine and I said the one with good looking June Clooney on it. How can anyone call George Clooney June…only one on zombie meds. LOL
Chippy
made my dinner this morning for work, cheese butties, got to work, i had a block of cheese in my lunch box, sandwhiches must be home in the fridge.
Tuesday, i went grocery shopping at commissary ... i walked up to the cashier and handed him my military ID to scan ... he then told me that i needed to place my items on the conveyer belt so he could total my items ... i felt like an idiot !! ... the same week, i was making my husband a cup of coffee ... i ground the coffee beans, poured water into the coffee maker, placed travel mug under the dispenser and brewed the "coffee" ... after the coffee finished brewing, i poured some cream into the mug, i noticed how white the coffee appeared ... i thought to myself, i must have put too much creamer in it ... i handed my husband his coffee on his way out the door ... he took a sip and said he thinks i stubbed my toe on the creamer ... later in the day i had to grind up some chinese herbs for my yellow lab ... i had to unplug the coffee grinder to plug in the ninja grinder ... i noticed the coffee i ground up earlier in the day was still in the grinder ... mystery solved !! ... i have done a lot of things like this since being on my meds ... the things i mention today are just a couple of things i have done in past week ... it would be funny, if not so sad
Jamie I have this same problem. My husband laughs at me and asks me where have I been all this time? He really thinks he is being funny.
Jamie said:
I consistently call my daughters' friends Lory and Tola. Their names are Tory and Lola.
O_o
While watching TV, I'll ask "What was on tonight that we wanted to watch?" My husband will look at me strange and reply "It's what we're watching now. What we've been watching for the past hour." Oh. I think this is a game of him hogging the remote though. I'm on to him! :-p
okay the best one I can think of or that my husband reminds me of enough is --pretty- funny. +++++++++++++++++++++++ sorry my service dog wants to help type. now for the zombie story.
I got up one night because I apparently had to use the bathroom. I do not remember going in there. Well my husband had to get up at 3am to go to work. He said when he came in there to take a shower I was sitting on the toilet with all my old work clothes and sound asleep. He said it took him several minutes to wake me up then when he did I was panicking because I thought I was late for work. I had already been out of work for 2 years. lol
I am so glad I found this today. I have these problems daily and I am loving hearing that I am NOT the only one. Please keep this going I love the laugh and it keeps me from crying. I am grateful to be a new part of your group. Thanks for having me.
Leonie said:
You guys are cracking me up because I've done the same and when I make such mistakes I tell my listener that I'm developing a new language with new words. Today I spent an hour trying to remember a simple word and I failed to recall it. It's so frustrating
Deanna said:I forget entire words as well however for me the most embarrasing moments are when I want to say something and a completly different word comes out of my mouth. The other night I was feeling cold and said to my husband. " Just a second I will get my power plug" and ment cardigan! At work I wanted to say "According to our last analysis" and said "According to our last pillowcase"! Really embarassig. And believe me there is absolutly no similarity between analysis and pillowcase in my native language either.
Deanna, I'm trying the 5-2 diet today, it's on the net and it's been on the BBC, it's also a best seller book. They say it improves brain function and allows the brain to repair during famine. 5-2 is 5 days of normal food then 2 days of almost starving as the body repairs itself
I've joked with my Doctor in the past about having my lips removed, they are a trigger point for the shooting pains. Lately I've been ''burning'' them with Balsamic vinegar and it does help. Combined with the Tegretol and Lyrica, I haven't had pain for a week. I'll try to reduce the Tegretol again since i've been pain free and see what happens. It could be the change in season that has kept the pain at bay, I'll never know but the vinegar is nice anyway.
Well yesterday I was making cornbread…I read the directions for it and thought it said put one cup of milk instead of a half of a cup. Well it turns OUT that after mixing it. it starts to look very THIN to me… So i re-read it carefully, and discover that this is for 2 packages of the mix. OR if you are mixing it with sour cream and other ingredients. SOOOO… I get out the pancake mix and sprinkle a little of that in, to make it ALLL better…
Nobody noticed… bwahahahahaahaa
Heck,now i'm starving for cornbread!
Min said:
Well yesterday I was making cornbread..I read the directions for it and thought it said put one cup of milk instead of a half of a cup. Well it turns OUT that after mixing it. it starts to look very THIN to me... So i re-read it carefully, and discover that this is for 2 packages of the mix. OR if you are mixing it with sour cream and other ingredients. SOOOO... I get out the pancake mix and sprinkle a little of that in, to make it ALLL better...
Nobody noticed..... bwahahahahaahaa
The forgetting words and slurring we’re getting me down. Thanks for sharing these posts. I now know I am not alone and just need to laugh it off instead of getting angry at myself.
What a wonderful topic.....no one will think you are off your rocker because everyone understands! Usually I get something in my head that needs to be done (it never stays there long) so I will walk around like I know what I am doing until my husband finally says something then I will make something up.....like I am looking for something. This morning it was raining like no tomorrow and he asked me what I was going to do and I told him just wander around and he said "What's new?". LOL Our dogs will sometimes come sit by me when I am really confused and look at me and turn their little heads from side to side as if to tell me it's OK mom.......I am forever loosing the phone and have to call it with the cell phone most of the time but have never put it in the refrigerator!!!!!!!!!
I put the milk in the cabinet and didnt find until after i got back from the store to get more…3 hrs later. Did i mention that i now walk in my sleep? I found that out when i woke up standing in the guest bathroom.
I have also accidentally taken too much Tegretol -- twice. The second time I had the flu and was sleeping all day. There was no clock around, so I think what happened was that I took my meds every time I woke up (as usual). The next day I couldn't even get out of bed. My roommate called an ambulance. While at the hospital they tested my level and it was 21! I must have accidentally taken at least 15 of those things. Anyway now I too am only taking 2 a day since it scared me so much (and increased my Lyrica to 200mg 3x a day).
Another incident involved back when I used to take MSIR for breakthrough pain. I lost 3 days because apparently I was taking them in my sleep. And when I finally did wake up, my arms were covered in huge blisters. So that was the end of that breakthrough pain med!
Also once lost a day due to my usual dosage of Baclofen. Not taking that anymore either.
Anybody else have motor skill issues due to Tegretol? Trouble talking (not just forgetting words, which I do all of the time too) or trouble walking? This happens to me a little to often and more than on Dr has attributed it to Tegretol.
Leonie said:
Tegretol was one of the few meds that helped control my pain, but I have also gained an astonishing amount of weight on it, and most disturbingly was on an automatic refill without the highly suggested monthly blood test. Last month my liver was very toxic due to the Tegretol. I take 2 a day, but my pain has skyrocketed. At least my liver is healing! Good luck with your healing!
RueAnn
I've been using LYRICA to help me get my Tegretol down, tt's a wonder drug BUT 3 weeks and 3 kilos weight gain with exactly the same diet, it is a side effect but I dismissed it. At this rate I will be the world's fattest man in a decade
People, today I got into the elevator at work and forgot which floor my office is at! I have been working at this company for 6 years - what is happening to me....????
Oh myy…Deanna…no worries…that kinda stuff happens to me too…I think its from being on the drug for soo long. I don’t know…but you are definitely NOT alone in this. . . .
This is a great thread! I am constantly confusing recipe ingredients or amounts. Most of the time I can fiddle a bit and make it okay... or I just pretend that's the way it's supposed to be. Once I warmed cobbler in the oven with the saran wrap on it! Didn't even notice when I pulled it out of the oven and served it to my fiance and parents. At some point, my Dad said "what's this chewy stuff that you put in it?" At about the same time, my fiance started pulling strands of plastic from his bowl. I'm like, "where on earth did that come from?" Of course, they figured it out before me. I was still sitting there dazed and confused.
It's a wonder I'm still allowed to cook! We should all be keeping journals of this journey. I have started them several times, but I forget to write in them! The entries I have written have a lot of ____ (blanks) where I can't remember the word I want to use. Maybe I'll just turn them into Mad Libs...
Good times... I've also looked for the phone while I'm talking on it! Forgotten the names of people I've known for years and lately, as I'm waking up (before I open my eyes), it takes me a few seconds to remember where I am! That's the Amnitryptaline, I bet. I've recently upped the dosage. Well, gotta go... somewhere. I've sure I'll figure it out soon! Have a great weekend!
Went into best buy to buy noise cancelling headphones. Asked the young guy in front where can I find head cancelling noise phones
when you woke up in the guest bathroom you didn't have guest visiting did you??? then it would be really embarrassing. I keep calling my little service dog "my walking pig" him and my husband look at me like I have lost my mind, I keep telling them I would have had to have had one first in order to loose it.
ouchie-booboo said:
I put the milk in the cabinet and didnt find until after i got back from the store to get more....3 hrs later. Did i mention that i now walk in my sleep? I found that out when i woke up standing in the guest bathroom.
Bump....I was cooking and doing dishes at the same time... I had turned on the faucet to add more hot water to the sink. Next thing I know after I turned away from the stirring the meat on the stove I have an overflow of water!!!!! My husband walks in and I say ...I have a water situation here...He says; I see that.... and just walks away.....LOL
No more multi tasking for me....GEEZ!!