Hi all. I'm just wanting some advice on what my options are regarding my TN.
It all started after having a root canal and still waiting to see a neurolgist.
Tried lots of tablets and none worked for me except tregretol. However, i developed an allergic reacation to these.
I don't know if surgery is an option because TN started after root canal so if not, is there any other procedures that can be done.
Many thanks
Una
The root canal is not likely to be the cause of your TN, more like a symptom. I went through 4 root canals that were unnecessary before finally getting the TN diagnosis. This is unfortunately common, as you will see the more you learn about TN. Try to find the best neurologist you can, someone who has experience with TN. I have had this for 6 years, and found that not all doctors know what they’re doing. I regret that I didn’t see a surgeon sooner. I did my research, though, and found the best and most experienced available to me. My MVD surgery went very well, even though my MRI didn’t show a problem. Two different neurologists in the past told me I was not a candidate for surgery. I wish I had not listened to them, because they were wrong! YOU know your pain and your body better than anyone. Don’t assume the neurologist is an expert on TN. This disease is rare enough that you might be the only case they have seen. I’m glad you have found this group. You will find a lot of compassion and understanding here.
Hi Una,
I spent thousands of dollars on dental work trying to stop the toothaches until I was diagnosed with TN…I have had it for 4 years now…I have tried several non invasive techniques that did not work very well for me. Gamma Knife, and four Balloon Compression/glycerol treatments…only temporary success…my last treatment was four months ago and I am back on the tegretol. Its the only thing that works for me but it has side affects I hate. I wish I had known about this website four years ago…I only found it like four days ago…I have learned much just in that short time…also its helps to know that you are not alone as TN is a rare condition…I am scheduled to have MVD surgery next month…I pray that it works…Vic in San Diego
Una,
Luckily I didn’t have TN pain in my teeth and go through the dental procedures that some have. But I agree with Suzanne. Consult a surgeon so you will know your options. My two neurologists did not agree I should have surgery. I insisted and finally the second one referred me but drug his feet for awhile. I know I was in pain for about 4 months longer than I should have. I also had a negative MRI. My surgery was not considered a real success because I still have pain, but I can function every day and my pain is manageable. I am deciding if I should have a repeat MRI. The surgeon has recommended it. Also most of my pain in now atypical but not all of it. I believe if I had had my surgery earlier, I would not have the pain that I do. I didn’t develop the atypical until January and my surgery was in April. I tried wanted a referral in late November.
And since you have tried a lot of medications, then you really need to consult one.
Liz
Thanks everyone for replies.
I needed a root canal due to an abcess and after this was done that is when my TN began. Since this i havent had any more work done on my teeth as i know now that any pain i have is due to the TN and after awhile the pain settles down. I’m on 900mg of gabepbellin (sp?) at moment and pain isn’t so bad at moment. Thankfully. 
Hopfully i will get an appoinment with neuro soon to see what kind of Tn i have and if any procedures may be helpful.
Hope you’re all pain free at moment.
Una xx
Una Mullan said:
Thanks everyone for replies.
I needed a root canal due to an abcess and after this was done that is when my TN began. Since this i havent had any more work done on my teeth as i know now that any pain i have is due to the TN and after awhile the pain settles down. I’m on 900mg of gabepbellin (sp?) at moment and pain isn’t so bad at moment. Thankfully.
Hopfully i will get an appoinment with neuro soon to see what kind of Tn i have and if any procedures may be helpful.
Hope you’re all pain free at moment.
Una xx
Hello- Just want you to know that I’m in the same boat you are. I experienced almost exactly the same thing. A poorly done root canal which lead to an extraction which led to this. Its been a nightmare. One thing that I’ve been researching is some type of jaw bone infection which may cause the same symptoms of neuralgia. Its called NICO. You might want to look into this- its not very common amongst regular dentists but holistic dentists have heard of this. It seems to also be very difficult to spot on an x-ray. I wonder if anyone else has heard of this or tried anything such as this?
Hi IES.
I did some research on NICO on the internet but my symptoms are more feelings of electric shocks in face and teeth. NICO says that symptoms are dull aching like feeling. Also NICO is commonly in tooth extractions but i haven’t come across root canals causing this. In saying this, i haven’t looked much about it but i will do. Sorry you’re going throug this pain aswell. Thanks for info again.
Wishing you well
Una
