Does anyone every get well?? Like for the rest of your life well??
I think it depends on what you consider well... Perception is reality. I think I have basically learned to cope and accept that these are the cards I've been dealt. I've become very good at avoiding pain triggers and becoming an advocate for myself and my health. Pain is for me is a reality,but I can usually can manage it and have a pretty happy ,fulfilling life most days. Like any type of health issue or disease their are ups and downs. I try my best to focus on Gratitude and Joy. Remembering that any day that I'm blessed to live in this body(regardless of its flaws) is a gift I've been given. -
I left you a friend request and a comment
There IS hope!
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Kimberly
I think I’m desperately in need of some hope right now.
Smile because you CAN have HOPE right now.
I know that sounds kinda corny but the truth is that hope is not something you know. Hope is not something you can see.
Hope is hope, so if you want to, you can have hope right now. Like newton1068 said, basically everything in life is a matter of perception.
I know it's hard and I know it can be a heavy burden especially when one misses being able to do certain things or misses having a certain way of life but, I also know that am much better adjusted to all this than I was when it first starter that's for sure. I'm better adjusted since joining this site also which was last October. I don't feel as crazy and frustrated.
Acceptance is the best route while still looking into and trying different meds and different things that you hear that others have tried and have had success with.
Never give up!! For me, my faith in God has helped so much. I have asked why me many times in the past......my daughter is going through some mental stress from a divorce of a very abusive husband with 2 small children. She shared something interesting with me from her session at her Psychologist visit the other day........he said that people get stuck and can't move forward as easily because they are asking "why me?".........he said that the answer to that question is "why not you" , I hadn't thought of those words of wisdom until just now and boy is that true. I have 2 grown children and 4 grandchildren and I know that I would rather this be happening to me rather than them, I'm sure every parent would feel that way.
I must remember this for when I have those low days....it sure puts things into a better perspective!!
I wish you all the best on this journey that is called "life", it can be a rocky road but it can also have a lot of beautiful roses to smell along the way!
Take care,
Cheryl
Never give up hope ,things do get better my friend
Socheezy said:
I think I'm desperately in need of some hope right now.
I think I am going through the stages of acceptance. I was defiant at first, adamant that this ridiculousness would not run my life. Up till now I have been in the "It's all ok, I'm going to fix it stage" and now I guess I am in the full realization stage. This is where I have realized that I will, for the rest of my life, have this ridiculous, despicable, horrendous disease?? is that what we call it? It appears that no matter if you have surgery, or take meds, it never truly goes away. Sooooo, I am dealing with that at the moment.
I just read what you posted. DON'T LOSE HOPE. I've been where you are right now, and it sucks. Totally. But, I can honestly say that these days I'm climbing out of the abyss. It's disgusting, this disease, I agree. I've had it for 2 years now, already feels like 2000 years. It has the power to wreck careers, relationships, friendships, quality of life, the list goes on and on ..... My own journey to hell and back, yes. It took me 18 months just to find a doctor that knew what was wrong. All those months everyday in pain - you know that pain - thought I was going crazy, is this real? I look okay, my teeth are okay so the dentist keeps telling me, am I losing it? My face feels like it's being crushed and shot at with red hot arrows but I look fine? Thought I was dying, wanted to die .... on and on day after day.
My point is, I'm writing this to you now from a different, better place. I stopped asking Why Me? These are the cards I've been dealt. Took me a while to accept that. And I'm still working on the acceptance part too, but I don't cry everyday anymore (plus I worked out one day that if I cry, I'm guaranteed a huge pain episode soon after).
I've read many positive things on this site, there ARE people that have managed to alleviate much or all of their pain, with surgery and/or meds. Also - know you are NOT alone with this. Finding this group has given me strength I didn't know I had, knowing there are others of us out there that completely understand. There is a lot of support here, from strangers, people you may never meet. It's restored my faith in humanity, seriously.
Have faith, have hope. You find a way forward, you will be okay.
I’m trying. I really am. I just find that I’m more and more unhappy everyday. I’ll get over this hump, eventually. I hope.
Thanks for the words of reassurement.
I am there too. You are not alone.
I think we've all been there at some point or another. I recently started a program here in Calgary Alberta at the chronic pain center and they gave us this website, please check it out and let yourself have hope that there's a possibility to manage the pain even if it's somewhat or up and down. The website is.....http://www.albertahealthservices.ca/2790.asp I'll try to link it....
http://www.albertahealthservices.ca/2790.asp they have done many studies in regard to chronic pain that does not seem to have any obvious reason. The pain is real so what is going on? They have discovered that the brain is misfiring signals intended to warn us of harm, except the brain is sending the wrong info....I am very hopeful that they have discovered a way to help us retrain our brains to minimize the pain. I think it's well worth checking out.
Wishing you all the best....
Socheezy said:
I think I am going through the stages of acceptance. I was defiant at first, adamant that this ridiculousness would not run my life. Up till now I have been in the "It's all ok, I'm going to fix it stage" and now I guess I am in the full realization stage. This is where I have realized that I will, for the rest of my life, have this ridiculous, despicable, horrendous disease?? is that what we call it? It appears that no matter if you have surgery, or take meds, it never truly goes away. Sooooo, I am dealing with that at the moment.
I got the results of my second MRI, and there is apparent swelling in my sinus cavity, enough that my doc is sending my to an ENT, and my platelet counts were low enough that he's also sending me to a blood doc. Good grief....If it's not one thing its another......
Many have had full recovery.They don't come here any more which is natural.There are solutions and or ways to cope and be happy.Find the best docs you can and hope and pray you find the best solution.Perhaps this swelling is pressing the nerve.Hang in there.Find some happiness.It's all around you.