Hello everyone,
This is CJ’s wife, Danielle, and I haven’t visited this page for a while.
CJ is still feeling quite well (thank God!) and has been weaned off the Tegretol successfully.
But just a quick question I've been thinking of lately.
Since the neuro doc said he didn't see any nerve compression on the MRI (with and without contrast), he thought it may have been a virus that triggered his TN.
Has anyone ever heard of that, or been told that?
One of the reasons the doc said that is because at the same time the first TN symptoms started back in June, he had this weird swelling and purpura in his feet, ankles, and calves. They ran a zillion blood tests on him back then, and all were normal. The swelling/purpura went away, but the episodes of TN progressively became worse, more frequent, and longer-lasting.
Hey there,
I’m glad to hear that CJ is doing well, it always helps when you start to feel better. I’ve heard of it being caused by MS, post herpatic, and the only other disease/contracted condition was Lymes, I don’t know how it works, or the nature of Lymes or how it causes it, I’m no doctor, and I certainly don’t think it’s a common side effect of the condition but I’m sure there was someone on the board that was affected by it with that eventually pinpointed as the cause.
I don’t know if that’s of any help to you, but thought I would mention it as maybe something else to look at.
Hope this helps
Much love
Gracie x x x
Oh, I think there may be something about Lupus too. If I think of any others I’ll pop em up.x x x
Grace Mackay said:
Hey there,
I'm glad to hear that CJ is doing well, it always helps when you start to feel better. I've heard of it being caused by MS, post herpatic, and the only other disease/contracted condition was Lymes, I don't know how it works, or the nature of Lymes or how it causes it, I'm no doctor, and I certainly don't think it's a common side effect of the condition but I'm sure there was someone on the board that was affected by it with that eventually pinpointed as the cause.
I don't know if that's of any help to you, but thought I would mention it as maybe something else to look at.
Hope this helps
Much love
Gracie x x x