I've had various bouts with TN through the years, starting when I was about thirteen. Found relief with upper cervical chiropractic care, but the bouts would come back if my neck would get knocked out, or I was under high stress.
At 36, mid Feb 2016 after a couple years of being shock free through UCC, I started getting shocks again due to high stress at work and a neck injury. Got worse than ever, and for the first time I also had severe burning and light sensitivity in my eyes. Took a month off work, went to the chiropractor, and began to get some relief, but it was slower than before. Decided to do do some research into the cause and cure of TN.
The medical world seems to believe that a deterioration of the Myelin Sheath makes the nerves extra sensitive to the pulsating nearby blood vessels, as well as other input. and is the "cause" of TN. What they don't know is why it deteriorates, or how to stop it.
Researching how to rebuild that sheath led me to the national MS society, since a deterioration of the Myelin Sheath is also identified as a cause or related to MS.
The MS society has really good information on the studies that have been done. There are three facts that I discovered through the studies posted there:
1) A viral infection has been identified as a probable cause for MS
http://www.nationalmssociety.org/What-is-MS/What-Causes-MS/Viruses
2) MS risk rate increases the further away from the equator you live. This further supports the virus theory - colder temperatures result in greater viral prevalence and infections.
3) The Faroe Islands near Greenland - no MS cases until 1943 when the British occupied the island during WW2. Then many cases. Points to the fact a virus was brought to the island.
http://www.nationalmssociety.org/What-is-MS/What-Causes-MS/Clusters
Now add to those three things some other items:
1) Many people report TN or MS symptoms appearing a year or two after dental work such as a root canal.
2) Many people report (and my experience confirms) that stress is a trigger for TN
3) Many people report (and my experience confirms) that upper cervical chiropractic relieves TN, although success is not universal
4) 90% of the population has Epstein Barr, Herpes, or similar virus in their bodies.
5) The blood-brain barrier normally prevents viruses and bacteria from entering the nervous system. https://en.wikipedia.org/wiki/Blood%E2%80%93brain_barrier
6) I had a spinal tap at around age 11 or 12 and got my first TN shock a couple years later.
Putting those together, I came up with this theory:
TN, MS, and related diseases are caused by a viral infection in the nervous system. The viral infection is made possible when the blood/brain barrier is breached during a procedure such as a spinal tap or root canal where blood mingles with a major nerve root or spinal fluid. The virus begins to cause the deterioration of the Myelin. This make nerves over sensitive to pulsing from a blood vessel, and light touches from wind, shaving, eating, etc. An attack is the result of an accumulation of input ā pounding from a tight blood vessel whips the nerve to a frenzy, and then the touch pushes it over the edge. MVDās work sometimes because they relieve a portion of the input. Chiropractic works sometimes because of the same effect. A net decrease in nerve stimulation. What neither addresses is the root cause of deterioration of the Myelin that is being attacked by the virus.
The blood brain barrier makes nervous system diseases difficult to treat, since it keeps antibiotics out as well as bacteria and viruses. Additionally, itās well known that antibiotics canāt kill viruses anyway.
So, thereās no solution unless you can kill the virus thatās causing the issue, and Iām not aware of any medication that can do it. In light of the above theory, my wife and I turned all our focus into trying to find something that is capable of killing the Herpes virus, the most common and likely suspect.
After a lot of research, one of the posts we found recommended olive leaf as able to kill Herpes.
More info here: http://www.olivus.com/herpes_olive_tea.htm
Someone else mentioned Lysine, along with Silver and Iodine. I started taking Silver and Iodine on Wednesday March 23rd, 2016 since we had it on hand, and immediately ordered Olive Leaf and Lysine.
Saturday night March 26th, 2016 is a day that I wonāt forget. Had around 15-20 attacks that day. Saturday evening, after USPS stopped by with our order, I added a heavy dose of Olive Leaf and Lysine to the Silver and Iodine. Like the Olive Leaf product warned, I got a belly ache, and felt really bad Saturday night. Took some charcoal to help wash out the toxins. Woke up Sunday morning to a shock free world. Yesterday, that was three weeks ago, and I havenāt had a single shock since. Not one!!! I feel better than Iāve felt for at least a decade.
In all the years Iāve experienced TN symptoms, thatās never happened. For me, chiropractic can relieve the very worst immediately, but shocks continue and will diminish gradually over the course of 1-3 weeks until completely gone. Thatās consistent with a pinched nerve/blood vessel combination getting a pressure relief, and input gradually being reduced.
Iād love if some others could try the combination I did, and see if it works for them.
To kill the virus, I took Olive Leaf, Silver, Iodine, Lysine. To rebuild nerves, I added Fish Oils, Zinc, Copper. It's supposed to take twelve weeks to get rid of Herpes, after which you can discontinue. My theory is that after you get rid of the virus, if you get re-infected, which is likely, it will not be a problem, since the blood/brain barrier will prevent entry of the virus into your nervous system outside of trauma where blood can directly enter the nervous system such as a root canal or spinal tap. .
If youāre interested in exactly the doses and stuff I used, feel free to let me know. Iāll be glad to post it as well if thereās enough interest. My goal is to help as many people as possible get rid of this absolutely horrible pain. It was the experiences posted here that often gave me hope and a path forward. I want to do the same for others.