Vimpat and disability?

Symptoms & Treatments Medication
1

So, the doctor has added Vimpat to my 8 medicines. This is the most I have taken since before I had surgery at 16. I'm scheduled for a steroid block next week. It's getting hard, I must admit. I have seen so many doctors in last few weeks. I've done gamma knife last year so essentially exhausted procedures and almost every medicine.

One of the ladies I work with asked me why I haven't filed for disability. I work full time and I honestly don't know I'm doing it but I am. I carry the insurance and try to do as well as I can. I try extremely hard not to miss work, I have a pretty good pain tolerance. It's not easy as most of you know. I have a 3 year old so I want to provide for him. It's just getting hard. I now am nauseous and having tremors.

Is anyone on here on disability from TN?

The other craziness is that my neurologist left the practice, they moved locations and in doing so, didn't copy ANY of medical records. I am trying to get a copy because I'm essentially starting over with the new one and have been seeing my old one for 18+ years so my history is there.

Just confused, in pain, and down today. Thanks for being an ear and understanding.

Rachel

2

Hi Rachel I too carry the Insurance for my family. I am not on full disability, but I am on Intermittent FMLA for Flare ups & my company pays disability once I am out 6 consecutive days in the Calendar year & they will retro pay any PTO previous that is related & any PTO after even if I am out just one day if it is related. Every year I have to go through the process of my doctor completing the forms for FMLA & being approved. I would check with your HR department & see if there is something similar you could do.

3

Thanks. I did that when my father was put on dialysis. I will give it some thought. I wouldn't be able to until June and not sure if this new neurologist I have would even do the paperwork. My other one retired early and this one is just not listening to me or giving me much of time of day with my pain. It's hard to work especially when people don't understand what is going on or what type of pain you're having. I just want to have a life.