There will be an announcement coming soon regarding the migration of this community to the new format using Discourse. This site will be migrating soon This community will be part of a new community (that also includes TN)called Living with Facial Pain. For reasons I don't know the original announcement's regarding this change have "poofed" We currently trying to modify the export script to include the private groups formed over the years here. Thus far we aren't having a lot of success. In light of the fact that the entire Ning network has collapsed several times over the past few weeks, we are going ahead with the migration of all of our communities as soon as possible to avoid loosing what we do have. Most of the groups have had little action recently, but if there are posts of interest to you, you may want to copy them for your own personal use.
Here is a part of the introduction to the new facial pain community:
Chronic facial pain syndromes effect as much as 1% of the population. Two of the better known conditions are Trigeminal Neuralgia (TN) and Glossopharyngeal Neuralgia (GPN) even though they are among the rarest. Pain specialists have attempted to classify other Facial Pain Syndromes by a number of names including atypical facial pain, Type 2TN, Type 7TN, Atypical Trigeminal Neuralgia (ATN), Trigeminal Neuropathic Pain (TNP) and Atypical Facial Neuralgia (AFP). Recently the term Persistent Idiopathic Facial Pain (PIFP) has been used to describe facial pain that is continuous or lasts most of a day. There simply is no consensus, even among practitioners
While this site continues to provide Support for TN and GPN, we have come to realize that many other facial pain patients attempt to deal with their disease within the GPN or TN communities. While there is much in common in dealing with the day to day challenges off Chronic facial pain, there is often frustration among the groups when it comes to treatments both drug, surgical and other interventions. For that reason, we have expanded our opportunities for continued Peer to Peer support to include other Chronic facial pain syndromes. We have chosen to lump them into the Persistent Idiopathic Facial Pain category, while maintaining both the TN and GPN categories.