It was two years ago today I had my MVD surgery.
Had a CSF leak come out my nose and spent 16 days in the hospital. 6 of them in ICU with a lumbar drain in my back. It took 8 months before I even started to get any pain relief and well over a year and a half before I became totally pain free. I was first diagnosed with TN in the winter of 1995. Major TN relaspse June 1, 2005. Had surgery Jan 14, 2009. The damage to the nerve was such that it took a really long time for it to heal. Never thought a vein connecting with the nerve could do so much damage.
I often see where people who are new here wonder why those of us who are doing better, do not come back once we are doing better. I can not speak for others, but sometimes I am at such a loss for words, when I read some of the stories, but then remember I was given much when I struggled. It was one person, who had a sucessfull Gamma Knife surgery that kept me going in the early days of the relapse. I may not always post, but I do read the blogs and disscussions. You all are very much in my heart and prayers!
One thing I always tried to do was keep my sense of humor. Many was the days when I thought if I could live with only half a head I would rip the left side of my head off and claim I was a reject from the movie, "The Day of the Living Dead." ( yes, at times my humor would get dark, but I figured better dark humor than no humor at all.) When the CSF leak went on for 15 days I thought well heck, my nose is dripping worse than my kitchen faucet. (The kitchen faucet has been fixed as well.) My best friend does not believe I have a brain, but she has seen my MRI and has talked to my neurosurgeon who told her he saw my brain. Keep telling my friend I DO have a brain and do not need to go to Oz to get one. ;) .
Puddles, the University of Oregon Mascot has a dance he does that is called the Ducky. The video shows Puddles trying to teach the ducky to a University of Southern California cheerleader. It is so funny. When I get home I am going to do the ducky. I pray for the day when you all feel you can do the ducky as well.
Hugs,
Sarah