just curious do all of you type 2 patients have triggers? pain when you brush teeth/ eat/ weather?
Mine seems to become much more intense when I get tired. I read Classic TN becomes worse with time, is this the same for Type 2 and can Type 2 have remissions like Classic TN?
Triggers: Cold air blowing on my face, very loud noises, vibration, pressure on the right side of my face (I can’t sleep on that side), if I brush my teeth very hard (usually ok though), and if I talk for a long period of time or fast. Cold air blowing on that side of my face can cause extreme pain for many hours!
I too would like to know if ATN or Type 2 ever goes into a remission and if it tends to get worse over time? Does anyone know???
Elstep mine actually gets better the more tired I am lol its weird Im interested to know if anyone with atn has had success with a mvd
my triggers are similar to Nomad: increasing pain with fatigue, a lot of talking and /or smiling, sleeping on my side, biting/chewing. re whether it progresses over time or can go into remission… I don’t know. I think it’s probably dependent on the cause, which seems to be elusive. for instance, if its truly PHN, there is the possibility of improvement. I’m curious to hear also.
FYI All: triggers are generally specific to each individual. There are features in common, but just as severity of pain can vary, so also can the particular stimulus that produces an attack. Likewise, either Type I or Type II TN can go into spontaneous remission. The bad news: nobody knows why.
Regards, Red
My triggers are smiling, wind, touch, eating, swallowing, blinking, talking, laying my head down... I think you get the idea. I am having MVD surgery in March. I feel your pain and frustration! By 5pm I am so tired and frustrated in pain and by 7pm, I need to be in bed, in the dark, with a pain pill. :( Good luck to everyone!
Sleeping has always been my worse time, I found Amtripyline helped as I cannot lay on my left side.
I prefer laying on my painful side it stops the pain lol what is wrong with me my symptoms are totally opposite!
Sometime I lay on my painful side and at first it helps but then i swap and find relief! There is no right or wrong and I like that as when I read very bad cases of TN i get scared but then I tell myself were all different xx
I am on 20 Mg of nortripyline it has helped with some of my many pains but cant seem to get rid of the TN migrane headache which to me is the absolute worst symtom anyone know a med that stops this pain?
Red can remission happen to people with type 2 pain that have it for more than a year. I heard the odds are not likely to have remission at all.
Richard A. "Red" Lawhern said:
FYI All: triggers are generally specific to each individual. There are features in common, but just as severity of pain can vary, so also can the particular stimulus that produces an attack. Likewise, either Type I or Type II TN can go into spontaneous remission. The bad news: nobody knows why.
Regards, Red
I can comment a bit about Elavil and similar medications in that class. They can help with migraine AND TN. I took Desipramine years ago along with Topamax for severe migraine and it was helpful. I stayed on the Topamax as migraine is always a concern for me. I’m Back on the Desipramine for the TN and I am hopeful. Maybe Red knows if time plays a factor in remission for type 2. I am praying hard.
I have type I and type II TN for 8 years. Eating , washing face, brushing teeth, talking… trigger the pain. I am on remission since last April. I don’t know why , but I feel so blessed!
Seow I’m so glad your in a remission. I pray everyday for some relief as I have type 2 horrified pain. Maybe there’s hope still for me. All I did was have a dental cleaning. I sound like a broken record. But that’s it c
When I started taking Topamax, it started to help with being able to help with sensitivity to wear my glasses and now that I am on a much higher dose, I can lay my head down, most nights, without too much discomfort. That is pretty good news, because for almost a year, I had to sleep sitting up! :( I get Botox injections for the migraines that are AMAZING! It doesn't do anything for the ATN though.
I am so excited to read this discussion today everyone!I know that sounds weird, but with getting ready for my surgery and my pain being almost overwhelming, it's just what I needed To remind myself that there are others out there that are able to survive everyday with this pain, this stress, the obstacles and that while I often feel isolated and alone, in pain, in a dark and quiet room, we all have a large support team behind each of us.
Good Luck and good health to everyone,
Aimee
Aimee nice to meet you im amanda when this first started i remember my head got so sensitive when laying on it i could bearly do it after that i jumped into doing chiropractic when seemed to calm my nerves that got me week to week for awhile but i could always feel the symptoms coming back after 2 months of doing that i gave up and went on antidepressents i'm actually only two wks in but it has helped with some of my pains before my pain would jump from place to place now is more localized. It is a very lonely disease i'm also glad this site is here i wouldn't know what i would do without it!! I wish you all the best with your surgery!!!!
Lauren(pebbles), there is definitely hope in your case! My TN started with root canal procedure . It seems that it is the major trigger in waking up my ‘dormant’ TN. After the procedure, the pain got worse and I had unbearable pain from then on. I was referred to many doctors and took various kinds of medicines to stop the pain. There are good days and bad days. Those bad days were nightmares, still vivid in my mind. The main reason for my TN1 is my nerves being compressed , as revealed in my latest MRI. For unknown reasons, I got no pain . Now I have stopped taking medicines and will go for another MRI in May. It will be interesting to see the results.
My doctor suggested a surgery two years ago, but I hesitated. Now , I think I shall wait and
see. I don’t know how long my remission will last and I am not taking things for granted. I relish every moment of my life! I understand your feeling and I can feel the desperation , pain and sufferings you all have been . Please don’t give up hope, hang in there!
Best wishes and regards.
My triggers for Type II (which make the CONSTANT pain WORSE) are - chewing, talking, laughing, cold air/weather, & change in weather. The chewing is so painful I went from 150 lbs to 111 lbs in just 4 mos. because I can hardly stand the pain! :( (I'm 5'7" tall.)
Vibration is a big one for me…don’t think I mentiOned it before