Hi Everyone, My name is Kris and I'm new here. I was diagnosed with TN at the end of May. The doctors have tried me on Tegretol which I broke out in a rash. Now, they have me on Neurontin which I slowly went up on. I have reached 1200mg 4xday, 4800mg. I'm tired but used to it now. I am still having pain alot throughout the day. Anytime I talk, move or stress about things, it gets worse. They just tried me on Cymbalta along with the Neurontin, but I was so tired and it made me cry all day long on and off. Any suggestions on the next meds I should try? Once again, this is all new to me and I just wish this pain would go away. Please help, thanks!
Hello! Thank you so much for posting. I am new with TN also, being diagnosed about May. Kc Dancer Kc has a list of all of the various treatments that she knows about and I am reposting the link. Then if you are interested you could place the treatment in the search feature and find posts that discuss it. Good luck!
Hi Kris,
I've been diagnosed with TN and AFP. Had the same reaction as you did to the Tegretol. Stayed on Pregabalin (Lyrica) until I had the glycerin injection (end of May this year) which stopped the TN, however, it's cold now and the AFP is flaring up quite badly. That never left but with the sun shining it was bearable. However, back on Pregabalin now (will be on 300 mgs by next week) and just been put on Amytriptiline (sp?). So starting at a low dose of that, and I've had the best sleep ever last night, And feeling quite good today - so good that I forgot that I shouldnt be sitting by a window where the draft is :-(
Hoping that the combination of the meds will help with the ATN but who knows...it's very early days yet.
I've just printed out the list from Kc Dancer Kc put on and I'm going to take that to my consultant and see what she says.
Wishing you loads of luck with the list.
Marcie
Hi,
I am sorry for what you are going through.
I also have TN pain on the left side and have been through multiple medications, but have finally found a combination that is helping. I tried Neurontin and Tegretol, but I was extremely tired on both and was having problems with my memory.
I am currently on 400 mg of Lamictal, 1200 mg of Trileptal, and a Clonidine patch. I switched from Tegretol to Lamitcal in the beginning of August. I can tell a real difference in pain relief when I added it.
Hope this helps,
Bethany