Tongue Spasms

General General TN & GPN (Old Site)
1

Does anyone suffer from extreme tongue spasms during episodes? Everyday, my tongue from the middle to the right base spasms so hard that it feels like if I looked in the mirror, then it would be flopping up and down although it doesn't. Also, it is extremely painful. Sometimes, just opening my mouth make this begin. Anyone with symptoms like this, please let me know.

Thank you

2

Portland, there is a discussion about this on our Trigeminal Neuralgia group. I recommend you join that community as well as Eagle. Cranial nerve vascular compression syndromes have a lot of commonalities. As long as you find a doctor who can give you relief, the name of your diagnosis is less important.