mimi, i am new to this forum and am not very savy on how to get around on it yet so im sure im doing this wrong. everything you wrote about TN and emotional effects could have come from my mouth. WOW! so sorry to here that this is happening to others, but relieved to find i am not alone. no one knows what im talking about and look at me as if i have two heads.
You're always waiting for it to come back. I got out in the wind the other day and I had about 30 zaps in my jaw that night. They weren't as intense and didn't last as long as before I started my Tegretol, but I was SO on edge waiting for it to get worse! I had some 100mg Tegretols left from before my first increase and I just popped one of those and by morning I was better. But it makes you sooooooooo edgy just waiting for that pain. Good luck to you!
hi donna, i know exactly what you mean. i think i miss out on so much because im so on edge that it will start or get worse with what ever it is i want to do. it really controls so much of our lives. i decided today, that im going to work on regaining some of that control. after joining this site and getting some encouragement from some of the things ive read im going to get better educated on how i can make this possible. thanks for your reply.
Donna Cook Turnage said:
You're always waiting for it to come back. I got out in the wind the other day and I had about 30 zaps in my jaw that night. They weren't as intense and didn't last as long as before I started my Tegretol, but I was SO on edge waiting for it to get worse! I had some 100mg Tegretols left from before my first increase and I just popped one of those and by morning I was better. But it makes you sooooooooo edgy just waiting for that pain. Good luck to you!
It helps to know we’re not alone in our feelings…((( hugs ))) mimi