What is the best medicine combination for type 2 the burning hot feeling I just seen my primary dr. who put me on a steroid because feel the inflammation on the side of my face and I am to take trileptal 300 mg 3 times a day and amitripytyline 25mg one a day i am still in the processes of researching for a neurologist I have looked at the recommendations in my state I just want to be sure I go to one that deals with many cases of tn the pain has been really bad especially in the morning it has even started to hurt in my upper jaw and sharp burning stabs in the right side on my tongue the pain is always on the right side I am having a hard time going to work I am a teacher and /i talk all day and that is what triggers the pain :(
it is suppose to be he could feel the inflammation in my face!!!
100mg/day of Amitriptyline made the biggest difference of everything else combined. You have to get to 100mg/day though. You might see results at 75mg, but 100 is the standard and that's what really changed my life.
I have type 2 and I'm on 1800 mg of Gabapentin (Neurotin) and 75 mg of Nortriptyline (similar to amitriptyline). I was originally on 2700 mg of Gabapentin, but decreased it due to side effects. I just have a dull ache now, where I felt like my nerves were burning through my skin before. I also use Lidocaine ointment (prescription) for the ache in my face and Orajel (or Oral Anesthetic Gel) for break though pain in my lips, teeth, and gums. I was put on a steroid regimen for 6 days... twice. I could definitely see that my cheek was slightly swollen, although none of my friends could. My skin has done different things. At first, it was slightly red. When I first started the Lidocaine, the redness became patchy. Now my face isn't swollen or patchy at all. :)
I have type 1 and type 2, I had a glycerine rhizotomy which got rid of the type 1 pain. I am now on celexia (antidepressant) for the ear pain and it works, as well as fiorinal with codeine for the tooth/burning pain. The fiorinal is my old school migraine medication and that with the celexia makes me feel human to some extent. I do get break through pain as well, but it is not so severe that I am laying on the couch crying all day like I did before, I can actually get some stuff done during the day. I do get exhausted though taking the narcotic and the celexia gave me a 20lb weight gain....grrr
Wendy
OMG..thank you Ayre...I am a teacher too and you understand what we do...we TALK incessantly (PAIN, yep)...we have to be UPBEAT for the kids and our administrators...WE ARE IN PAIN all the time; some times worse than others, but it never stops! My pain is also worse in the morning; makes it hard to get up at 5AM and push myself to GO to school... I was just added MORE meds today and I am so fearful of how they will react with my job, my life in general. This has been going on for nearly 14 months now with very short repreaves of 'good times'. I just don't tell my family how much or how bad it hurts. If my students / administrators (like most people) don't see something wrong, it is hard for them to understand how much we truly are agonizing.
Do you have trouble putting two thoughts (cohesive thoughts) together sometimes? When a student askes you a question, do you sometimes have to take a minute and maybe ask a student 'what were we talking about' to get back where you were? I know my IQ has gone down considerably; and I am sure I couldn't afford that to happen!! :) My friend, we are here for each other...message me if you would like to talk further!
Cris
Cris~ I totally get the whole talking all the time and the pain that causes! It is funny I work as a RN and a particularly snotty co-worker has mentioned more than once"you don’t look sick" those are the days I wish I could zap them for even 1 hr of the pain we go through. Funny most of us deserve Oscars for our “performances” that we put on when we have too. I am on so many meds and I say the wrong words all the time when I mean something else, remain foggy brained, most of the time just to be able to work. I am blessed for having the co-workers I do. I constantly double check meds and orders to make myself feel better. Here is to keeping up the front, and holding our thoughts together 
It is so hard I teach young 5's so it can get pretty crazy lol I dont like to tell people about the pain and then I come home and have to take care of my kids and /i hate that I am so tired and in pain.... I feel no one really understands!!!!! What grade do u teach?
cris said:
OMG..thank you Ayre...I am a teacher too and you understand what we do...we TALK incessantly (PAIN, yep)...we have to be UPBEAT for the kids and our administrators...WE ARE IN PAIN all the time; some times worse than others, but it never stops! My pain is also worse in the morning; makes it hard to get up at 5AM and push myself to GO to school... I was just added MORE meds today and I am so fearful of how they will react with my job, my life in general. This has been going on for nearly 14 months now with very short repreaves of 'good times'. I just don't tell my family how much or how bad it hurts. If my students / administrators (like most people) don't see something wrong, it is hard for them to understand how much we truly are agonizing.
Do you have trouble putting two thoughts (cohesive thoughts) together sometimes? When a student askes you a question, do you sometimes have to take a minute and maybe ask a student 'what were we talking about' to get back where you were? I know my IQ has gone down considerably; and I am sure I couldn't afford that to happen!! :) My friend, we are here for each other...message me if you would like to talk further!
Cris