I wanted to share some encouraging information for those who have lost hope or are facing surgery for your TN. I have suffered with TN for 6 years with symptoms including electric like shock pain in my rt. eye, side of the nose, teeth and gum areas and forehead. I have tried many of the more natural remedies as well as taking tegretol, all of which had no affect or little affect on my pain. I finally had an mri (enhanced) that showed compression of the right trigeminal nerve by the superior cerebellar artery. I decided that if I were to have a chance against this condition I had to move forward with surgery to relieve the pressure.
I took several weeks to research doctors who use the minimally invasive endo-scope for this procedure and found that geographically there are limited neuro-surgeons specializing in this. I live in North Idaho and the closest surgeon was in Cedar Sinai Hospital in Los Angeles, Dr. Michael Alexander. On July 12th I had the surgery performed. I have to admit I was very apprehensive and even had thoughts that I would not make it thru the surgery at 60 years old. I felt very comfortable with Dr. Alexander and his track record spoke for itself. I awoke after the 3 hours surgery in ICU and have to say that I felt pretty good (with a lot of the anesthesia still in my system). I had 4 different vein or artery lines in as well as a catheter. This was by far the worst thing trying to turn over in bed with all of this attached. There was mild to moderate pain in the incision site and along the muscle at the base of my skull and neck, I had some nausea and a little dizziness, a mild fever, and my blood sugar elevated. The worst of it was over by the next day and I began to eat and get up and move around some. I experienced no TN related pain at all!!
Two months after the surgery, I continue to be pain free, and have resumed all normal activities. This was a life changer for me, and I would recommend it to anyone suffering with TN. If you have any concerns or would just like to talk about the surgical procedure let me know.
There is Hope!!!
Jay