has anyone become reclusive due to fear of the pain. i cant bring myself to leave the house. i can contol the pain at home.
Before I was 'controlled' on the meds, my answer to you would be ABSOLUTELY!!
I was ok if I went shopping on my own and didnt have to have any contact with people. But one night I went to a party, people were chatting away to me when BAM I had a full blown attack. I was trying to hide it but my eyes were welling up with tears before I had to ( between gritted teeth) excuse myself to the toilet and sob.
This in turn made me very anxious to socialize - so yes I know what your going through :(
Elaine - I so empathise with you. Yesterday the pain was so extreme that I didn't want to go anywhere, do anything - just kept saying: "I just want to go to sleep, so the pain will stop". Unfortunately, I had an eye doc appt and had to ask my husband to take me as I knew I could not drive in such pain. The pain finally subsided a bit and everything went okay until after dinner when it all exploded again. I think everyone's natural instinct is to sort of curl up in a ball and protect ourselves - physically and emotionally - from anything that could make our pain worse or instigate it. Sometimes, you just have to force yourself to leave home and retrain your emotional brain to feel okay and safe when you are away from your "den".
Not because of fear of pain but because of depression. This has hit me hard. Very, very hard. So I don't leave the house very often.
Totally relate to this highway of thinking. Leaving the house was MUCH harder until I began getting botox injections in the scalp. Now, I KNOW that when the attack begins due to cold or wind, it is only allowed to go so far. The MVD took care of the highest type pain. It is a mind game though, because my MEMORY of the highest, most miserable pain is brought to the surface and I have to tell myself this will not happen now. It is sort of like PTSD. So my work-around is reminding the fear that it is ungrounded fear for this new day in time. Funny, how fear does not recognize a timeline! Take care, and think on lovely, pure, good things to get the best today has to offer!
Simcerely,
LyndaS
Lisa (iamrite) said:
Not because of fear of pain but because of depression. This has hit me hard. Very, very hard. So I don’t leave the house very often.
It's getting to where I kinda have to force myself to go to a social function. I do work part time. But with work I know how long I will be there. With the social function I don't really.. and I just kind of have to go to work ya know?? Plus it's cold out right now. I think with spring and summer and fall I will be more willing to socialize but still not for long periods of time..
thanks. i know you are right, but my bed seems to beckon me.
D McGinnis said:
Elaine - I so empathise with you. Yesterday the pain was so extreme that I didn't want to go anywhere, do anything - just kept saying: "I just want to go to sleep, so the pain will stop". Unfortunately, I had an eye doc appt and had to ask my husband to take me as I knew I could not drive in such pain. The pain finally subsided a bit and everything went okay until after dinner when it all exploded again. I think everyone's natural instinct is to sort of curl up in a ball and protect ourselves - physically and emotionally - from anything that could make our pain worse or instigate it. Sometimes, you just have to force yourself to leave home and retrain your emotional brain to feel okay and safe when you are away from your "den".
i am getting a new pain dr. and maybe that will help. thanks
LyndaS said:
Totally relate to this highway of thinking. Leaving the house was MUCH harder until I began getting botox injections in the scalp. Now, I KNOW that when the attack begins due to cold or wind, it is only allowed to go so far. The MVD took care of the highest type pain. It is a mind game though, because my MEMORY of the highest, most miserable pain is brought to the surface and I have to tell myself this will not happen now. It is sort of like PTSD. So my work-around is reminding the fear that it is ungrounded fear for this new day in time. Funny, how fear does not recognize a timeline! Take care, and think on lovely, pure, good things to get the best today has to offer!
Simcerely,
LyndaS
Lisa (iamrite) said:Not because of fear of pain but because of depression. This has hit me hard. Very, very hard. So I don't leave the house very often.
I know you did not feel like celebrating this year, but Happy Belated Birthday from all your friends on here Elaine and if you felt like spending it in bed this year then thats ok, lets hope next Birthday your pain will be under control and you will want to spend it with others.
i want to see friends and socialize but it can be very hard when i leave i can drive. then the air causes an attack and i am out of it. this is from tissue shortage and positioning. its alot easier with my spouse. i dont want to ruin a day for friends.
thank you to all. love you!
lisa have things improved at all?
Lisa (iamrite) said:
Not because of fear of pain but because of depression. This has hit me hard. Very, very hard. So I don't leave the house very often.
It can be hard to hide those damn attacks and I hate to give in to them.
Rachael Manhall said:
Before I was 'controlled' on the meds, my answer to you would be ABSOLUTELY!!
I was ok if I went shopping on my own and didnt have to have any contact with people. But one night I went to a party, people were chatting away to me when BAM I had a full blown attack. I was trying to hide it but my eyes were welling up with tears before I had to ( between gritted teeth) excuse myself to the toilet and sob.
This in turn made me very anxious to socialize - so yes I know what your going through :(