I've been told many times it can take a year for a MVD to work. Has anyone really had to wait a year for pain to quit. I am 5mnths post op and losing patience. Still on full amount of drugs and maybe feeling a little better but definitely still having pain, Can't do this,,can't eat that. just getting tired of the whole thing. What did I go throught the MVD for?? Definitely not this.
Hi Linda, unfortunately, life changes everything with TN. It’s hard to accept, but for some of us, the pain doesn’t go away after an mvd. It sure wasn’t the miracle for me. Disappointing, but after four years, I am finally coming to terms with living. Can’t escape it, so I make the best of what I have. There are down times and overly hopeful times, but life is happy now even though it hurts a lot of the time. I get tired of it too. This site is the place to rant and rave. That’s one of the reasons we are here. Without the mvd, who knows? You could be worse off, right?
I feel like all I do is rant, rave, beg, plead, cry, sob...I had MVD on March 4th. No relief of pain at all. It has been almost 2 years. Pain everyday, all day, every hour, every minute, every second. I try not to complain all the time to my husband. He has been great, but I am an absolute drag to be around. I try to hold myself together around my kids (29,24,19). Does anyone else feel like they are just sliding into a dark abyss of just pain?
I try to look for the positives in my life. I do have many blessings. Great husband and kids, a roof over my head, food on the table. But it is just so d*** hard to enjoy any of my blessings because of the pain ALWAYS there.
My heart goes out to all of those who visit this site.
Take care and I wish to all of you some relief of this never ending spiral of pain
Janice, I wish your pain was not so intolerable. It’s so hard to bear up with intense pain like you describe. What does your neurologist say? Hugs, big ones your way. laurel
I had left sided MVD 18 months ago, came back after 6 months and then some. Just diagnosed jan 2013 right side. Its crazy jabs to left jabs to the right . I feel like a middle weight boxer LOL? Really if I do not laugh will cry. I have waited lomg enough to address left. Was scheduled for surgery this past Feb for right had to postpone for other medical reasons. I feel if I do not address left side there will ne trouble for me on the right. Waiting gives your body a chance to heal the nerve especially. I know its rough but it seems to be the guideline after MVD. Hang in their Linda keep us posted.