I was just wondering if anyone has ever experienced what I am experiencing on the Carbamapezine.
Last week I had a knot come up on my face just next to my ear, this week I have a know on my right lymphnode. They are very sore to the touch. I've never had anything like this before. I go back to the doctor on the 23rd for an evaluation on the medication so I will ask her then. I just wanted to check with you guys as well as you are always so helpful. Hugs to all and I hope you are all pain free.
I haven't had any. Now I DID have a problem with a lymph node below my left ear, but after a big steroid shot and some REAL sudaphed, it's gone. My doc said my sinuses aren't draining right. So I will be taking REAL sudaphed again. I haven't taken it in YEARS because of having to go check it out in the pharmacy because of the meth heads. Maybe that's why I have had so much sinus problems.....because I wasn't taking it anymore.
That does not sound right to me. I would call the doctors and ask them about this. You may need to be seen sooner. I can’t remember right buti think that is one of ickier reactions. If you go look up the medication it will give a list of reactions including mild to the ones where the medication should be stop ASAP. Sorry I can’t be of more help on this. Hopefully somebody else will be able to chime in on this.
Well I went back to the doctor today. My meds were changed and if I don’t get any relief soon she is going to admit me in the hospital and start infusions. I’m so tired of the pain, the side effects from all the meds. It’s depressing.
I know the medications can be depressing. The carbamazepine did nothing to relieve pain for me. The side effect for me was that I was falling without warning. After 3 broken coccyx's and a broken shoulder, I was thankfully taken off it. But each med works differently for each person. Keep the lines of communication open with your doctor. There are a lot of medications out there. I haven't found the right one yet, but still hold out hope. I've recently started going to a therapist for the depression and it really has helped. Who knew that deep breathing and affirmations could stem the fall into a major "pity party"?
My name is Donna and lately i have been feeling the same thing , my jaw and ear hurt and i feel pressure this morning it felt swollen , Iam going the docs on tues as well Iam wondering if its the trigeminal or meds . I hope u feel better soon .
Hi, I hope you are feeling better. What kind of infusions is your doctor talking about? Just curious. I'm sorry for your pain. Love and Gentle HUGS, Julie
JLT said:
Well I went back to the doctor today. My meds were changed and if I don't get any relief soon she is going to admit me in the hospital and start infusions. I'm so tired of the pain, the side effects from all the meds. It's depressing.
She didn’t really say. I know that sounds horrible not to know. I’m just so over all of this. I have to get some relief soon. I’ve pretty much quit eating as it brings on attacks. I will find out though. My doctor has actually came a long way for me…in the beginning I was not happy at all with her. Believe it or not she gave me her cell phone # during my last visit. She is pretty educated on this disease. As for the infusions though…I will let you know. I hope everyone is pain free and out of Hurricane Sandys path. I am in AL and the 40 mph winds are kill my TN.