Thanks ahead of tme for any suggestion. I am so afraid that I will get no where again.I have spent all of last week trying to get help. I was turned down at the pain clinic, Maryfreebed they both told me we don't deal with tn. When maryfreebed I became very panicky and begged them to help me and. I told them if they didn't help me I wasn't leaving untill they did something so the
So he said he would try to get me an app. at their pain clinic he said he didn't. know if the would take me or not.I think he just wanted to get me to leave.I don't know what to ask her to do at this point I need to change my amtriptaline
to something else because it's. not helping the burning boring pain you all know :he rest.Any suggestions of what I ask for meds? This time I have to go to my gp. They never know what to even try at this point I am depressed, havering panic attacks. I don't. leave the house hardy at all anymore how do I make her know how much pain I am in? I am scared, I hope thy have my papers ready to see Dr. Casey. I don't. know if he can help me again he did my 1st mvd it didn't. help so should I still go see him? Any suggestions? I can't think straight, the pain is so bad how will I talk to her. I have to leave here in a hour.Thanks to everyone that can suggest anything. WISHING ALL THE BEST DAY POSSIBLE!! Dawn
Dawn, take a deep breath sweetie, I can hear the desperation and I understand completely,
((( hugs ))). I’ve been there…breaks my heart…
Just let the doctor lead the appointment, BUT make sure you stress that your current medication isn’t working, you are in a pain crisis and don’t know what to do.
Good for you for standing your ground at last appointment. We need to make sure “they” understand the pain we’re in …it wears us down when there’s no periods of relief.
As for Dr, Casey, it’s your choice, but I feel that you should see him again, MVD isn’t a cure unfortunately it’s just a best chance at getting reduced pain better able to respond to meds and a hope for a lengthy period of NO pain!! He knows you and your history, he’s been inside your head, and may have a better perspective and suggestions on what to do next.
It’s worth it to see him, you can always get a second opinion somewhere else.
Big ((( hugs ))) and positive thoughts! Go in thinking positively as hard as that can be while in pain, I will be thinking of you and praying you find relief soon!
Mimi xx
Mimi,Thank-you so very much! I went to my DR. app. this morning, she did change my meds.I asked to be taken off the amitriptyline and start trilptal.I will start weaning off one and start the other. She hadn't even started the referral for DR. Casey yet but she will.I know who to call to make sure it gets done tomorrow. Other then that, she said that was the best she could do . I am not sure what to do next.I was given a number for another pain clinic in Grand Rapids. I will call in the morning. I have a few people I need to call, because I have to do something, if it's trying to get back to my old pain Dr. just untill I can get the other options underway.Opiates is not the way I want to go back too.I know what went wrong last time. I want to just keep the pain under control untill I find other ways to live with this monster.I could just tell she has know idea of how painful this is.She just brushed off everything I said about the depression, stress, the anxiety, I have been dealing with. The fact that everything takes time at this.I feel like I am struggling to be patient, so I will start again tomorrow.Thank - you for your prayers and understanding. It just so frustrating. After 22yrs. of this I am so sick of this it is getting worse instead of better so I know I have to do something fast.Mimi thank -you again. HUGS BACK, Dawn